We would love to hear about your experience with this disease. Share Your Story! Your insights may help another person somewhere along their own spondylitis journey. Consider these questions: What is your diagnosis? How old were you when you were diagnosed? What...
Advocacy Resources
Support your diagnosis journey
Tools to Support your Diagnosis JourneyDiagnosis can be a difficult and emotionally draining process. Learn about the different ways to get support during diagnosis, from talking to friends and family to seeking professional help. We hope you make use of these tools...
Advocating for yourself
What is it and why should you do it? Advocacy. It can be a scary word and an even scarier thing to do. What does it truly mean to advocate? Sure, the dictionary says it’s “public support for or recommendation of a particular cause or policy,” but how does that...
A guide to Navigating Information on the Internet
It can be daunting researching medical information online. It’s easy for a quick google search of your symptoms to lead you to spend hours on your phone, doom scrolling through articles that leave you believing worst-case scenarios and crawling with anxiety about...
Spoon Theory and Talking to Loved Ones
Has someone ever asked you what it feels like to live with a spondyloarthritic condition and you’re just at a loss for words? Sometimes it feels like SpA is impossible to explain and people on the outside will never understand. Some say “if you know, you know” but in...
Using a Body Map to Describe your Symptoms
Drawing how you visualize your condition can be extremely powerful. Art can be used as a therapy and has shown to lead to increased quality of life ⁽¹⁾. It can also help healthcare professionals understand the experience of health and illness ⁽¹⁾. Additionally, art...
Spondyloarthritis & The Workplace
It is no secret that SpA can have an effect on your employment and work life. In our 2020 Quality of Life Survey, 40.8% said that they are working full-time, including self-employment. 2.4% were on short-term disability and 15.8% were on long-term disability. We've...
Learn to navigate your post secondary education while living with Spondyloarthritis.
Learn to navigate your post secondary education while living with Spondyloarthritis.Navigating post-secondary education in itself can be challenging. Moving away from home, making new friends, declaring a major and balancing your social life, relationships and school...
Time Management
Let’s be real, young adults tend to have busy lives, whether it’s school or work, social events or family obligations, many of us have a full schedule. It can be difficult to manage this when adding doctor’s appointments, medical procedures, flare ups and everything...
Disability Resources in Canada
BC Government of BC Services for People with Disabilities Alberta Government of Alberta, People with Disabilities Saskatchewan Government of Saskatchewan Ministry of Social Services Saskatchewan Assured Income for Disability (SAID) Manitoba Government of...