Advocacy Resources

This page will feature reading resources for education, treatments, health management, diet, exercise, and support for members who suffer from or who have loved ones who suffer from ankylosing spondylitis, axial spondyloarthritis, and related diseases such as psoriatic arthritis,  IBS and IBD (ulcerative colitis and Crohns), psoriasis, heart and stroke,…

When I search for “autoimmune disease” or “immune-mediated disease” on YouTube, I get a lot of results, but very few of them are about ankylosing spondylitis (AS). It’s disappointing that so few videos are made by people with AS. I’m looking for someone to connect with, who understands, and who…

October 19th is National Psoriatic Arthritis Day (National PsA Day) in Canada. This is the 4th year we acknowledge this special day. We have applied to illuminate several landmarks across Canada in PsA colors.  Keep an eye out on this page for updated landmarks!   Psoriatic arthritis is a spondyloarthritic condition…

November 19th is National Enteropathic Arthritis Day in Canada. This is the third year we acknowledge this special day. We have applied to illuminate several landmarks across Canada in EnA colors (purple).  Keep an eye out on this page for updated landmarks! Enteropathic arthritis is a spondyloarthritic condition and an invisible illness for…

World AS Day is an annual day dedicated to people with Axial Spondyloarthritis (axSpA) globally. It will be recognized on Saturday May 6th this year.  On World AS Day, members of a number of countries organize activities around the world to raise awareness.  The goal is to raise awareness for…

The results of our Quality of Life Survey are in! We asked Spondyloarthritis (Spa) patients from across Canada to share their experiences of how Spa pain affects their lives. Over 850 of you raised your voice to be included in our national survey, and we have compiled your responses into our 2021…

AS Health Storylines APP With the AS Health Storylines App, it’s easy to record your symptoms, fatigue levels, moods and more. Choose what you want to track to build your own summary “My Storylines” to learn more about your health, and to share more — safely and securely — with…

Spondyloarthritis eLearning Course Use this Education module for people with Ankylosing Spondylitis (AS), now reffered to as Axial Spondyloarthritis (AxSpA) Are you looking for a comprehensive understanding of spondyloarthritis? Look no further than UHN’s online course. Our interactive modules provide an in-depth look at the causes, symptoms and treatments of…

Share Your Story! We would love to hear about your experience with this disease. Share Your Story! Your insights may help another person somewhere along their own spondylitis journey. Consider these questions: What is your diagnosis? How old were you when you were diagnosed? What treatment are you on? Tell…

Tools to Support your Diagnosis Journey Diagnosis can be a difficult and emotionally draining process. Learn about the different ways to get support during diagnosis, from talking to friends and family to seeking professional help.  We hope you make use of these tools to support your diagnosis journey. On this…