Your Stories
Discover the powerful and inspiring stories of Canadians living with spondyloarthritis on our dedicated Spondyloarthritis Stories page. Each journey showcases resilience, strength, and hope, offering firsthand experiences of navigating life with this chronic condition. From overcoming challenges to finding effective treatments and support, these personal accounts highlight the importance of awareness, early diagnosis, and community. Whether you’re newly diagnosed or have been managing spondyloarthritis for years, these stories will remind you that you are not alone. Explore real-life perspectives, share your own experience, and be part of a supportive network that empowers and uplifts.
When Pain Is More Than Back Pain: Understanding Spondyloarthritis in Canada
WATCH Georgina's Story NowPain is often easy to dismiss—especially when it looks like something common. Back pain. Psoriasis. Even what feels like “growing pains.” But when pain becomes persistent, unpredictable, and life-altering, it may be something far more...
Five Minutes at a Time – Kayleigh’s axSpA Story
▶ Watch: Kaleigh AxSpA Story, and how she takes it five minutes at a time. A candid conversation hosted by Brenda Delodder, Executive Director of the Canadian Spondyloarthritis Association.About the Conversation In this video, Canadian Spondyloarthritis Association...
A Lifetime with Psoriatic Arthritis: How Colin Found Strength in Setbacks
▶ Watch: Colin on Life, Setbacks, and Renewed Strength with Psoriatic Arthritis A candid conversation hosted by Brenda Dauder, Executive Director of the Canadian Spondyloarthritis Association.About the Conversation Psoriatic arthritis (PsA) can reshape a...
Living with Psoriatic Arthritis: Erin’s Story of Strength, Resilience, and Hope
▶ Watch: Erin’s Journey with Psoriatic Arthritis A real and powerful story of living, growing, and thriving with psoriatic arthritis. About the Conversation In this video, Brenda Delodder, Executive Director of the Canadian Spondyloarthritis Association (CSA), sits...
Sarah’s Story: A Journey Through Ankylosing Spondylitis, Misdiagnosis, and Resilience with Chronic Illness
Sarah began experiencing low back pain in April of 2019. The pain started off mild, but quickly became debilitating. Soon, she found herself having to get out of bed in the middle of the night to take three ibuprofens, stretch for 20 minutes, and return to bed hoping...
A 30-Year Journey to Diagnosis: Georgina’s Life with Ankylosing Spondylitis
It took Georgina nearly 30 years to receive a diagnosis, despite having symptoms, a family history of AS, and carrying the HLA-B27 marker. Unfortunately, this isn't uncommon for many people living with spondyloarthritis. Georgina first started experiencing stiffness,...
From Coast to Coast: Tyler Ashton’s 11,000 km Solo Cross-Canada Ride to Champion Those Living with Spondyloarthritis
FOR IMMEDIATE RELEASE: From Coast to Coast: Tyler Ashton’s 11,000 km Solo Cross-Canada Ride to Champion Those Living with Spondyloarthritis | Canadian Spondyloarthritis Association Tyler Ashton is on an extraordinary mission. With nothing but his bicycle,...
Chris’ Story : A Story of Resilience over Ankylosing Spondylitis
Your gift will be matched dollar for dollar up to $5,000 until March 31st - Donate now to make twice the impact!Chris, a dedicated Vice Principal at Amherst Regional High School in Nova Scotia, first noticed minor lower back pain in 2016. At 35, his doctor attributed...
‘Let’s Get Loud for A.S.’: Raising Awareness for Ankylosing Spondylitis
After being diagnosed with ankylosing spondylitis at 29, Montrealer Michael Santillo turned his journey into action by creating the Let’s Get Loud for A.S. fundraiser gala. The annual event raises awareness and funds to support people living with AS, improve diagnosis...