We would love to hear about your experience with this disease.
Share Your Story! Your insights may help another person somewhere along their own spondylitis journey.
Consider these questions:
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What is your diagnosis?
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How old were you when you were diagnosed?
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What treatment are you on?
Read some of our Community Stories here:
In recognition of the Canadians affected by axial spondyloarthritis (AxSpA), we’re sharing Dr. Élie Karam’s story.
“It’s just a sprain. It’ll go away. It’s nothing.” I thought I simply had a back sprain from playing squash. I dismissed the painful inflammation that began to spread from my back to my neck and shoulders. I became frustrated and annoyed at the limitations these...
Michael M’s Story
It has been 30 years since I was diagnosed with ankylosing spondylitis in 1991. Prior to diagnosis I went through ten awful years that those living with axial spondyloarthritis will be familiar with: painful days and more painful, sleepless nights; a search for...
Meet Mihaly, our new Support Group Leader for Southwestern Ontario!
I know what you’re already thinking…terms like Ankylosing Spondylitis and Enteropathic Arthritis are hard enough to pronounce and this guy has a name that looks like hieroglyphics! It’s easy. It’s pronounced “Me-High Jur-X” , not so bad! I’ve been living with AS for...
Raj’s Story
Meet Raj from the UK. He is the Chair of NASS, patient advocate and motivated to not let AS define him. Diagnosed in his early 20’s Raj was told he would likely be in a wheel chair in 10 years. Watch his inspiring video sharing how he set goals, had a plan and...
Bjillian’s Story
Former Canadian Spondyloarthritis Assocation board member, Bjillian describes her first symptoms and how the pain progression happened. She also describes how she deals with the disease on a daily basis and how it impacts her life.
Graeme’s story: Living a full life in the face of ankylosing spondylitis
For the hundreds of thousands of Canadians with inflammatory arthritis, the road to effective treatment can be rocky.Arthritis comes in many forms beyond the rheumatoid arthritis and osteoarthritis we’re all familiar with. For those with ankylosing spondylitis (AS),...