We would love to hear about your experience with this disease.
Share Your Story! Your insights may help another person somewhere along their own spondylitis journey.
Consider these questions:
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What is your diagnosis?
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How old were you when you were diagnosed?
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What treatment are you on?
Read some of our Community Stories here:
Sarah’s Story: A Journey Through Ankylosing Spondylitis, Misdiagnosis, and Resilience with Chronic Illness
Sarah began experiencing low back pain in April of 2019. The pain started off mild, but quickly became debilitating. Soon, she found herself having to get out of bed in the middle of the night to take three ibuprofens, stretch for 20 minutes, and return to bed hoping...
A 30-Year Journey to Diagnosis: Georgina’s Life with Ankylosing Spondylitis
It took Georgina nearly 30 years to receive a diagnosis, despite having symptoms, a family history of AS, and carrying the HLA-B27 marker. Unfortunately, this isn't uncommon for many people living with spondyloarthritis. Georgina first started experiencing stiffness,...
From Coast to Coast: Tyler Ashton’s 11,000 km Solo Cross-Canada Ride to Champion Those Living with Spondyloarthritis
FOR IMMEDIATE RELEASE: From Coast to Coast: Tyler Ashton’s 11,000 km Solo Cross-Canada Ride to Champion Those Living with Spondyloarthritis | Canadian Spondyloarthritis Association Tyler Ashton is on an extraordinary mission. With nothing but his bicycle,...
Chris’ Story : A Story of Resilience over Ankylosing Spondylitis
Your gift will be matched dollar for dollar up to $5,000 until March 31st - Donate now to make twice the impact!Chris, a dedicated Vice Principal at Amherst Regional High School in Nova Scotia, first noticed minor lower back pain in 2016. At 35, his doctor attributed...
‘Let’s Get Loud for A.S.’: Raising Awareness for Ankylosing Spondylitis
After being diagnosed with ankylosing spondylitis at 29, Montrealer Michael Santillo turned his journey into action by creating the Let’s Get Loud for A.S. fundraiser gala. The annual event raises awareness and funds to support people living with AS, improve diagnosis...
Walking from Mexico to Canada with Arthritis
They say that a journey of 1000 miles begins with a single step. Now if you have arthritis or any form of chronic pain disease, you know this to be an especially daunting quote. In high school, I read Wild by Cheryl Strayed. A story of a troubled, newly divorced woman...