September is a time to shed light on the challenges faced by millions of individuals living with chronic pain conditions.
The constant battle with pain and limitations can lead to feelings of frustration, isolation, and fatigue. However, it is crucial to remember that those facing this condition are warriors who demonstrate resilience and strength.
The Hidden Nature of Spondyloarthritis Pain: SpA not only affects physical well-being but also takes a toll on mental and emotional health.
We emphasize the importance of empathy and validation in supporting individuals living with SpA, even when their pain may not be readily apparent. The CSA works hard to ensure pain management resources are available for both caregivers and those diagnosed. Resources can be accessed here.
To learn more about Pain management, register for our upcoming webinar on Pain Management with Dr. Max Sun.
Impact on Quality of Life: The CSA asked SpA patients from across Canada to share their experiences of how SpA pain affects their lives. Over 850 people raised their voices. We have compiled responses into our Quality of Life Survey Report.
The report affirms the significant impact SpA has on patients’ quality of life. It also reveals what patients need to live a better life – items such as better awareness and understanding of symptoms, early diagnosis and access to effective treatment options. You can view the recommendations by accessing the report, found here.
Advocating for Awareness and Support: In our recent patient survey, 80% of those reported that they had never heard of, or had heard of but not understood the term Spondyloarthritis until they received a diagnosis. SpA affects more people than Multiple Sclerosis and ALS combined. Yet these and many other diseases, even rare ones, are better known and understood than SpA. There are thousands of people who have SpA but do not know they have a condition that, while chronic, is treatable and that there are many innovative treatment options available and more on the horizon. By raising awareness, we can work towards reducing the delay to diagnosis, improved education and access to treatment options for those living with SpA. Help us raise awareness and check out the CSA social media channels and get social with us! We ask you to share using #PainAwarenessMonth and #CSAwareness.
The Power of Community: Everyday, the CSA recognizes the strength and resilience of the SpA community. Experts agree that taking part in a support group can improve your life. From online support groups to local meetups, the SpA community serves as a source of encouragement, validation, and hope for those navigating their journey. Interested in connecting others? Join a support group here.
Even though SpA is a debilitating, invisible disease, it is essential to remember that there is hope. Through increased awareness, validation and understanding of SpA, we can create a supportive environment for those affected by this condition. By advocating for better research, treatment options, support and accessibility to education, collectively we can improve the quality of life for individuals living with spondyloarthritis.