It took Georgina nearly 30 years to receive a diagnosis, despite having symptoms, a family history of AS, and carrying the HLA-B27 marker. Unfortunately, this isn't uncommon for many people living with spondyloarthritis. Georgina first started experiencing stiffness,...
FOR IMMEDIATE RELEASE: From Coast to Coast: Tyler Ashton’s 11,000 km Solo Cross-Canada Ride to Champion Those Living with Spondyloarthritis | Canadian Spondyloarthritis Association Tyler Ashton is on an extraordinary mission. With nothing but his bicycle,...
Your gift will be matched dollar for dollar up to $5,000 until March 31st - Donate now to make twice the impact!Chris, a dedicated Vice Principal at Amherst Regional High School in Nova Scotia, first noticed minor lower back pain in 2016. At 35, his doctor attributed...
After being diagnosed with ankylosing spondylitis at 29, Montrealer Michael Santillo turned his journey into action by creating the Let’s Get Loud for A.S. fundraiser gala. The annual event raises awareness and funds to support people living with AS, improve diagnosis...
They say that a journey of 1000 miles begins with a single step. Now if you have arthritis or any form of chronic pain disease, you know this to be an especially daunting quote. In high school, I read Wild by Cheryl Strayed. A story of a troubled, newly divorced woman...
Joining CSA in this episode is Monica, who has bravely navigated her own journey with spondyloarthritis. Monica shares her personal experiences, including the challenges she faced with treatment resistance and insights on the importance of having access to new...
Michael Santillo’s journey after being diagnosed with Ankylosing Spondylitis (AxSpA/AS) not only illuminates the challenges faced by millions worldwide, but also exemplifies the power of community and determination in the face of adversity. Knowing that the lack of...
“It’s just a sprain. It’ll go away. It’s nothing.” I thought I simply had a back sprain from playing squash. I dismissed the painful inflammation that began to spread from my back to my neck and shoulders. I became frustrated and annoyed at the limitations these...
It has been 30 years since I was diagnosed with ankylosing spondylitis in 1991. Prior to diagnosis I went through ten awful years that those living with axial spondyloarthritis will be familiar with: painful days and more painful, sleepless nights; a search for...
I know what you’re already thinking…terms like Ankylosing Spondylitis and Enteropathic Arthritis are hard enough to pronounce and this guy has a name that looks like hieroglyphics! It’s easy. It’s pronounced “Me-High Jur-X” , not so bad! I’ve been living with AS for...