by CSAAdmin | Aug 16, 2022 | Advocacy Resources, Juvenile, Resources, Young Adult
Advocating for yourself What is it and why should you do it? Advocacy. It can be a scary word and an even scarier thing to do. What does it truly mean to advocate? Sure, the dictionary says it’s “public support for or recommendation of a particular cause or policy,”...
by CSAAdmin | Aug 16, 2022 | Advocacy Resources, Juvenile, Resources, Young Adult
A guide to Navigating Information on the Internet It can be daunting researching medical information online. It’s easy for a quick google search of your symptoms to lead you to spend hours on your phone, doom scrolling through articles that leave you believing...
by CSAAdmin | Aug 16, 2022 | Advocacy Resources, Juvenile, Lifestyle & Wellness, Mental Health, Relationships, Resources, Young Adult
Spoon Theory and Talking to Loved Ones Has someone ever asked you what it feels like to live with a spondyloarthritic condition and you’re just at a loss for words? Sometimes it feels like SpA is impossible to explain and people on the outside will never understand....
by CSAAdmin | Aug 16, 2022 | Advocacy Resources, Juvenile, Lifestyle & Wellness, Relationships, Resources, Young Adult
Using a Body Map to Describe your Symptoms Drawing how you visualize your condition can be extremely powerful. Art can be used as a therapy and has shown to lead to increased quality of life ⁽¹⁾. It can also help healthcare professionals understand the experience of...
by CSAAdmin | Aug 16, 2022 | Advocacy Resources, Lifestyle & Wellness, Resources, Young Adult
Spondyloarthritis & The Workplace It is no secret that SpA can have an effect on your employment and work life. In our 2020 Quality of Life Survey, 40.8% said that they are working full-time, including self-employment. 2.4% were on short-term disability and 15.8%...
