by CSAAdmin | Aug 16, 2022 | Advocacy Resources, Resources, Talking to Professionals
Tools to Support your Diagnosis Journey Diagnosis can be a difficult and emotionally draining process. Learn about the different ways to get support during diagnosis, from talking to friends and family to seeking professional help. We hope you make use of these tools...
by CSAAdmin | Aug 16, 2022 | Advocacy Resources, Juvenile, Resources, Young Adult
Advocating for yourself What is it and why should you do it? Advocacy. It can be a scary word and an even scarier thing to do. What does it truly mean to advocate? Sure, the dictionary says it’s “public support for or recommendation of a particular cause or policy,”...
by CSAAdmin | Aug 16, 2022 | Advocacy Resources, Juvenile, Resources, Young Adult
A guide to Navigating Information on the Internet It can be daunting researching medical information online. It’s easy for a quick google search of your symptoms to lead you to spend hours on your phone, doom scrolling through articles that leave you believing...
by CSAAdmin | Aug 16, 2022 | Advocacy Resources, Juvenile, Lifestyle & Wellness, Mental Health, Relationships, Resources, Young Adult
Spoon Theory and Talking to Loved Ones Has someone ever asked you what it feels like to live with a spondyloarthritic condition and you’re just at a loss for words? Sometimes it feels like SpA is impossible to explain and people on the outside will never understand....
by CSAAdmin | Aug 16, 2022 | Advocacy Resources, Juvenile, Lifestyle & Wellness, Relationships, Resources, Young Adult
Using a Body Map to Describe your Symptoms Drawing how you visualize your condition can be extremely powerful. Art can be used as a therapy and has shown to lead to increased quality of life ⁽¹⁾. It can also help healthcare professionals understand the experience of...
