Living with axial spondyloarthritis (axSpA) is a journey that looks different for every patient, but stories like Michael’s highlight both the challenges and the hope that come with a diagnosis. Michael first began experiencing sharp, shooting pains in his back, neck, and vertebrae in his mid-20s. What started as stiffness that he thought might be from stress or a pulled muscle quickly escalated into debilitating pain that left him unable to drive, climb stairs, or even get out of bed. After countless visits to chiropractors, massage therapists, and even emergency hospitalizations, he was eventually diagnosed with ankylosing spondylitis (AS) at age 28. For Michael, having an answer meant he could finally begin managing his condition, and begin reclaiming his life. His story reflects the importance of early diagnosis, and highlight why axSpA awareness matters for patients and healthcare providers alike.
Today, Michael is not only managing his AS but thriving. As the founder of the annual Let’s Get Loud for AS Gala in support of the Canadian Spondyloarthritis Association, he has transformed his personal challenges into a platform for spondyloarthritis awareness, education, and fundraising. Through events, community outreach, and sharing his journey on platforms like the Take a Pain Check podcast, Michael helps others understand what it’s like to live with axial spondyloarthritis while showing that a positive and fulfilling life is still possible. His advocacy underscores the power of the axSpA community, the importance of patient support networks, and the critical role of spondyloarthritis fundraising initiatives in driving research and improving patient care.
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