We would love to hear about your experience with this disease.
Share Your Story! Your insights may help another person somewhere along their own spondylitis journey.
Consider these questions:
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What is your diagnosis?
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How old were you when you were diagnosed?
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What treatment are you on?
Read some of our Community Stories here:
Chris’ Story : A Story of Resilience over Ankylosing Spondylitis
Your gift will be matched dollar for dollar up to $5,000 until March 31st - Donate now to make twice the impact!Chris, a dedicated Vice Principal at Amherst Regional High School in Nova Scotia, first noticed minor lower back pain in 2016. At 35, his doctor attributed...
‘Let’s Get Loud for A.S.’: Raising Awareness for Ankylosing Spondylitis
After being diagnosed with ankylosing spondylitis at 29, Montrealer Michael Santillo turned his journey into action by creating the Let’s Get Loud for A.S. fundraiser gala. The annual event raises awareness and funds to support people living with AS, improve diagnosis...
Walking from Mexico to Canada with Arthritis
They say that a journey of 1000 miles begins with a single step. Now if you have arthritis or any form of chronic pain disease, you know this to be an especially daunting quote. In high school, I read Wild by Cheryl Strayed. A story of a troubled, newly divorced woman...
Podcast – Monica’s Navigation of Spondyloarthritis
Joining CSA in this episode is Monica, who has bravely navigated her own journey with spondyloarthritis. Monica shares her personal experiences, including the challenges she faced with treatment resistance and insights on the importance of having access to new...
Let’s Get Loud for AS: Michael Santillo’s Inspiring Journey
Michael Santillo’s journey after being diagnosed with Ankylosing Spondylitis (AxSpA/AS) not only illuminates the challenges faced by millions worldwide, but also exemplifies the power of community and determination in the face of adversity. Knowing that the lack of...
In recognition of the Canadians affected by axial spondyloarthritis (AxSpA), we’re sharing Dr. Élie Karam’s story.
“It’s just a sprain. It’ll go away. It’s nothing.” I thought I simply had a back sprain from playing squash. I dismissed the painful inflammation that began to spread from my back to my neck and shoulders. I became frustrated and annoyed at the limitations these...