Women, teens and girls face unique challenges living with spondyloarthritis.
Spondyloarthritis can affect mothers, daughters, sisters, friends, and female figures in different ways. The spondyloarthritis community in Canada recognizes the need to address the underrepresentation of women in the SpA community, a topic brought to the forefront by the eye-opening Baring It All survey results.
Spondyloarthritis is a group of inflammatory rheumatic diseases that primarily affect the spine and joints. However, this condition extends beyond physical symptoms, impacting all aspects of a person’s life, from mental health to daily functioning.
As we celebrate International Women’s Day 2024, the Canadian Spondyloarthritis Association proudly embraces the theme of #InspireInclusion. Today, we honor the remarkable women who have not only persevered through the challenges of spondyloarthritis but have also become powerful advocates for inclusivity within the community. These trailblazers inspire us with their resilience, strength, and commitment to fostering an environment where everyone feels heard and valued. International Women’s Day is a poignant reminder that women play a pivotal role in shaping a world where diversity and inclusion thrive.
“This International Women’s Day, I am honored to celebrate the strength of the incredible women in our CSA community who live with spondyloarthritis each and every day. Navigating life’s diverse moments with this condition has shaped my personal journey. Today, let’s come together to celebrate our unique stories and unite in our contribution to a more inclusive world. Happy International Women’s Day 2024! #InspireInclusion #IWD2024”
– Robyn Dymtrow, Director of Development & Engagement
While SpA can affect anyone, the Baring It All survey results have highlighted a notable gender gap within the community. The Women’s Sexual and Reproductive Health Survey was developed and launched on International Women’s Day 2021 with the goal of eliciting a stronger understanding of patients’ experiences and identifying information gaps across different stages of life. Women were asked about their experiences and insights about contraception, family planning, menopause, sexual health, and parenting. Historically, SpA has been commonly associated with men, leading to the underrepresentation of women in research, clinical trials, and healthcare discussions surrounding the disease.
The CSA’s Baring It All survey aimed to bring to light the unique challenges faced by women living with SpA. The results exposed the disparities in diagnosis, treatment, and overall understanding of the disease in women. It is a call to action for healthcare professionals, researchers, and the general public to acknowledge and address these gender-specific issues.
Key Findings:
Delayed Diagnosis: The survey revealed that women often experience delayed diagnoses, with their symptoms frequently attributed to other conditions or dismissed altogether. This delay can result in prolonged pain, increased joint damage, and a slower response to treatment.
Treatment Disparities: Women with SpA may face challenges in accessing appropriate treatments. The survey indicated that there is a need for more gender-sensitive approaches to medication and therapeutic interventions, as responses to certain treatments may differ between men and women.
Impact on Mental Health: Living with a chronic condition like SpA can take a toll on mental health. The survey showed that women often grapple with higher levels of stress, anxiety, and depression compared to their male counterparts, emphasizing the importance of holistic care that addresses both physical and mental well-being.
The Baring It All survey results serve as a catalyst for change. The CSA encourages the healthcare community to adopt a gender-inclusive approach to research, diagnosis, and treatment. By fostering awareness and understanding, we can pave the way for a future where all individuals, regardless of gender, receive equitable care and support in their journey with Spondyloarthritis.
This International Women’s Day, let us commit to breaking down barriers and challenging the status quo. By addressing the unique challenges faced by women with Spondyloarthritis, we can work towards a future where every individual, regardless of gender, receives the care and support they need to live a full and fulfilling life.
“On International Women’s Day, let’s optimize this moment to raise awareness and unite, for in our collective voices lies the power to reshape perceptions, break down stereotypes, and pave the way for greater understanding and support”
– Brenda Delodder, Executive Director.