Advocacy Resources

Spondyloarthritis eLearning Course Use this Education module for people with Ankylosing Spondylitis (AS), now reffered to as Axial Spondyloarthritis (AxSpA) Are you looking for a comprehensive understanding of spondyloarthritis? Look no further than UHN’s online course. Our interactive modules provide an in-depth look at the causes, symptoms and treatments of…

We would love to hear about your experience with this disease. Share Your Story! Your insights may help another person somewhere along their own spondylitis journey. Consider these questions: What is your diagnosis? How old were you when you were diagnosed? What treatment are you on? Tell us about your…

Tools to Support your Diagnosis Journey Diagnosis can be a difficult and emotionally draining process. Learn about the different ways to get support during diagnosis, from talking to friends and family to seeking professional help.  We hope you make use of these tools to support your diagnosis journey. Undiagnosed? Click…

Advocacy Resources What is it and why should you do it?  Advocacy. It can be a scary word and an even scarier thing to do. What does it truly mean to advocate? Sure, the dictionary says it’s “public support for or recommendation of a particular cause or policy,” but how…

Advocacy Resources It can be daunting researching medical information online. It’s easy for a quick google search of your symptoms to lead you to spend hours on your phone, doom scrolling through articles that leave you believing worst-case scenarios and crawling with anxiety about something that is likely not as…

Advocacy Resources Has someone ever asked you what it feels like to live with a spondyloarthritic condition and you’re just at a loss for words? Sometimes it feels like SpA is impossible to explain and people on the outside will never understand. Some say “if you know, you know” but…

Advocacy Resources Drawing how you visualize your condition can be extremely powerful. Art can be used as a therapy and has shown to lead to increased quality of life ⁽¹⁾. It can also help healthcare professionals understand the experience of health and illness ⁽¹⁾. Additionally, art can be used as…

Advocacy Resources It is no secret that SpA can have an effect on your employment and work life. In our 2020 Quality of Life Survey, 40.8% said that they are working full-time, including self-employment. 2.4% were on short-term disability and 15.8% were on long-term disability.  We’ve develloped this information to…

Advocacy Resources Learn to navigate your post secondary education while living with Spondyloarthritis. Navigating post-secondary education in itself can be challenging. Moving away from home, making new friends, declaring a major and balancing your social life, relationships and school life can be challenging  for anyone. Adding chronic illness to this…

Advocacy Resources Let’s be real, young adults tend to have busy lives, whether it’s school or work, social events or family obligations, many of us have a full schedule. It can be difficult to manage this when adding doctor’s appointments, medical procedures, flare ups and everything else that comes along…