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Ashley’s Story

SpA Warrior Stories

My name is Ashley and I am 28 years old. I was diagnosed in 2014 with Psoriatic Arthritis and in 2017 with Fibromyalgia. I’ve had Psoriasis since I was about 10 years old, but I was never warned by my doctor’s that 30% of people who have Psoriasis would develop Psoriatic Arthritis.

Ashley's Picture

I started to have pain and swelling in my early 20s, but I chalked most of it up to having a physically demanding job. I was 23, I had just moved in with my boyfriend and I was in my last year of my Master’s degree. The sign that things were really not right in my body began when my toes swelled and started to look like sausages and the swelling would not go away with ice or medication. I pushed back on my doctor, who told me that I was just wearing bad shoes, and demanded that she X-ray my feet. I knew that something was wrong in my body, but I did not know what yet. When she got the X-rays back, she saw the signs of arthritis and knowing that I had Psoriasis, referred me to a Rheumatologist immediately. It took several months before I had an appointment to see the Rheumatologist for the first time and my body quickly deteriorated. I started to have a lot of swelling in my toes and fingers. I had pain in my knees, my spine, and my neck that never seemed to lessen. I finally saw a Rheumatologist and began cycling through treatments and medications, trying to find something that worked for me. I tried anti-inflammatories and DMARDs, like Methotrexate and Leflunomide. I learned to self-inject my medications. My pain only got worse. I started having difficulty walking and going up and down the stairs. I had trouble managing working and going to school, with the constant pain that I was in. I started using a cane and relying on assistive devices to move around. 

Ashley in front of ruins

I started my first biologic in 2016 – Humira. I was so excited, because I thought that this would be the treatment that I needed. I thought it would be a miracle drug for me and I would have my life back to the way it was before. Even though Humira was the start of a cycle of biologics, I did not give up. In 2015, I finished my Masters’ of Information Science degree at the University of Toronto.

In 2017, I married the love of my life. There were times when my pain and my treatments failing brought me down, but he has always been hopeful that things would get better. He’s stayed with me through never-ending doctor’s appointments and constantly changing medications.

Ashley's Wedding Picture

This story is a part of an ongoing feature on Young Adults, as part of our Arthritis Awareness Month. Read more stories here.