﻿{"id":4211,"date":"2022-08-10T09:55:29","date_gmt":"2022-08-10T14:55:29","guid":{"rendered":"https:\/\/sparthritis.ca\/?p=4211"},"modified":"2023-02-05T10:57:23","modified_gmt":"2023-02-05T15:57:23","slug":"le-recit-de-gloria","status":"publish","type":"post","link":"https:\/\/sparthritis.ca\/fr\/le-recit-de-gloria\/","title":{"rendered":"Le r\u00e9cit de Gloria"},"content":{"rendered":"<p>[et_pb_section fb_built=\u00a0\u00bb1&Prime; _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb min_height=\u00a0\u00bb643.3px\u00a0\u00bb custom_margin=\u00a0\u00bb-50px|auto|-153px|auto|false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_post_title author=\u00a0\u00bboff\u00a0\u00bb date=\u00a0\u00bboff\u00a0\u00bb _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_post_title][et_pb_text _builder_version=\u00a0\u00bb4.19.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p>Tout au long de ma vie, j\u2019ai toujours senti que la douleur avait un nom que personne ne pouvait nommer.<\/p>\n<p>La douleur articulaire au d\u00e9but de mon adolescence a \u00e9t\u00e9 diagnostiqu\u00e9e comme \u00abdouleurs de croissance\u00bb. Toujours active, j\u2019ai entendu tout au long de ma vie que la raideur et la douleur venaient du surmenage d\u2019avoir utilis\u00e9 des poids et halt\u00e8res ou d\u2019un entra\u00eenement trop dur dans le but de faire un demi-marathon. Vers la trentaine, l\u2019amplitude de mouvement de ma hanche s\u2019\u00e9tait d\u00e9t\u00e9rior\u00e9e au point que je ne pouvais plus effectuer d\u2019exercices de yoga, ce que beaucoup de clients plus \u00e2g\u00e9s ex\u00e9cutaient facilement.<\/p>\n<p>[\/et_pb_text][et_pb_image src=\u00a0\u00bbhttps:\/\/sparthritis.ca\/wp-content\/uploads\/2023\/01\/gloria.jpg\u00a0\u00bb title_text=\u00a0\u00bbgloria\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb force_fullwidth=\u00a0\u00bbon\u00a0\u00bb _builder_version=\u00a0\u00bb4.19.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb min_height=\u00a0\u00bb58.2px\u00a0\u00bb custom_margin=\u00a0\u00bb||186px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.19.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.19.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.19.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb-140px||||false|false\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;]<\/p>\n<p>&nbsp;<\/p>\n<p>Apr\u00e8s des ann\u00e9es d\u2019essais et d\u2019erreurs, des visites chez le m\u00e9decin sans r\u00e9ponses et des sympt\u00f4mes impossibles \u00e0 contr\u00f4ler, on m\u2019a r\u00e9f\u00e9r\u00e9 \u00e0 un rhumatologue. Le rhumatologue a fait des mesures sur ma colonne vert\u00e9brale et mon examen de l\u2019amplitude des mouvements. Il a regard\u00e9 les radiographies de la hanche, m\u2019a pos\u00e9e beaucoup de questions sur mon historique de douleur et mes ant\u00e9c\u00e9dents familiaux d\u2019arthrite. Il m\u2019a ensuite envoy\u00e9 pour une radiographie des articulations sacro-illiaques et tests \u00a0sanguins. Les r\u00e9sultats de la prise de sang sont revenus n\u00e9gatifs pour le g\u00e8ne HLA B27. Cependant, apr\u00e8s avoir examin\u00e9 la radiographie de l\u2019articulation SI, il m\u2019a dit que j\u2019avais une spondylarthrite ankylosante (SA). C\u2019\u00e9tait la toute premi\u00e8re fois que j\u2019entendais le nom de la maladie. Il a dit qu\u2019il voulait mieux visualiser mes articulations sacro-illiaques et a ordonn\u00e9 un tomodensitogramme. Il m\u2019a dit que la spondylarthrite ankylosante, \u00e9tait une maladie inflammatoire auto-immune chronique qui provoque souvent la fusion de la colonne vert\u00e9brale et les zones connexes.<\/p>\n<p>\u00c0 46 ans, j\u2019ai finalement eu un nom pour trois d\u00e9cennies de douleur. Le diagnostic \u00e9tait un soulagement. Apr\u00e8s des ann\u00e9es \u00e0 me demander si je me poussais trop fort, ou si c\u2019\u00e9tait autre chose, je savais que mon \u00e9tat avait un nom.<\/p>\n<p>Mes articulations SI sont compl\u00e8tement fusionn\u00e9es et font partie de mon bas du dos. Apr\u00e8s deux ans d\u2019attente sur une liste, j\u2019ai eu une arthroplastie de la hanche et j\u2019ai aussi des probl\u00e8mes d\u2019\u00e9paule. Bien que l\u2019on puisse penser que la maladie a mis fin \u00e0 ma vie active, c\u2019est tout le contraire. M\u00eame si je n\u2019ai pas d\u2019exercices \u00e0 fort impact comme la course \u00e0 pied, l\u2019exercice fait partie de ma routine de traitement, avec le m\u00e9dicament pour contr\u00f4ler la douleur et ralentir la progression de la maladie. J\u2019assiste \u00e0 la physioth\u00e9rapie et je me concentre sur les exercices quotidiens de natation. Je voudrais recommencer \u00e0 faire du v\u00e9lo dans le futur.<\/p>\n<p>Quand j\u2019en fais moins, j\u2019en ai plus mal. Je trouve que j\u2019ai besoin d\u2019une vari\u00e9t\u00e9 d\u2019exercices \u2013 j\u2019ai la chance de travailler \u00e0 la maison et mon bureau assis \/ debout me permet d\u2019\u00eatre mobile pour \u00e9viter la raideur. Je nage maintenant, et j\u2019essaie de marcher autant que possible. Je ne peux pas arr\u00eater de bouger ou d\u2019\u00eatre active. C\u2019est quelque chose que j\u2019aime et qui fait partie de qui je suis.<\/p>\n<p>Je suis tr\u00e8s reconnaissante d\u2019avoir une famille tr\u00e8s solidaire. L\u2019arthrite rend les aidants plus occup\u00e9s. Mon mari est devenu tr\u00e8s bien inform\u00e9 sur la maladie et m\u2019aide avec des injections toutes les deux semaines. Il me rappelle aussi quand j\u2019ai besoin de ralentir ou de me reposer. Mes trois fils ont \u00e9t\u00e9 formidables \u00e0 prendre certaines responsabilit\u00e9s ou \u00e0 aider avec la t\u00e2che chaque fois qu\u2019ils savent que je suis dans une pouss\u00e9e inflammatoire ou ne me sens pas bien.<\/p>\n<p>Bien que l\u2019arthrite s\u00e9vit dans ma famille, j\u2019ai d\u00fb apprendre \u00e0 conna\u00eetre la maladie une fois qu\u2019elle est devenue une partie de ma vie. Je me suis \u00e9duqu\u00e9e, j\u2019ai commenc\u00e9 \u00e0 faire du b\u00e9n\u00e9volat pour l\u2019Association canadienne de la spondylarthrite et \u00e0 recueillir des fonds pour la Marche contre la douleur \u00e0 Halifax, en Nouvelle-\u00c9cosse.<\/p>\n<p>Les gens n\u2019associent pas toujours mon \u00e9tat avec l\u2019arthrite, mais la plupart ont \u00e9t\u00e9 tr\u00e8s gentils et compr\u00e9hensifs. Vous ne savez jamais comment cette maladie vous affecte jusqu\u2019\u00e0 ce que vous le viviez vous-m\u00eame. Je veux que plus de gens puissent parler \u00e0 leur m\u00e9decin \u00e0 ce sujet afin qu\u2019ils puissent \u00eatre diagnostiqu\u00e9s plus t\u00f4t et peut-\u00eatre ne pas traverser les ann\u00e9es de douleur et d\u2019incertitude auxquelles j\u2019ai d\u00fb faire face.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.19.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.19.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.19.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p><span>Vous pouvez lire plus d&rsquo;histoires de patients <a href=\"\/fr\/category\/vos-histoires\/\">en cliquant ici.<\/a><\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Tout au long de ma vie, j\u2019ai toujours senti que la douleur avait un nom que personne ne pouvait nommer. La douleur articulaire au d\u00e9but de mon adolescence a \u00e9t\u00e9 [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":4215,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p>[et_pb_section fb_built=\"1\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" custom_margin=\"-50px||||false|false\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_post_title _builder_version=\"4.17.4\" _module_preset=\"default\" author=\"off\" date=\"off\" hover_enabled=\"0\" sticky_enabled=\"0\"][\/et_pb_post_title][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p><p>Throughout my life, I always felt like the pain had a name nobody could speak.<\/p><p>Joint pain in my early teens was dismissed as \u201cgrowing pains\u201d. Always active, I heard throughout my life that stiffness and pain came from over-doing it with weights or training too hard for a half-marathon.<\/p><p>By my thirties, the range of motion in my hip had deteriorated to the point where I could no longer perform yoga exercises that much older clients were performing easily.<\/p><p>After years of trial and error, doctor visits without answers and symptoms that could not be controlled, I was referred to a rheumatologist.<\/p><p>The rheumatologist did measurements on my spine and my range of motion examination. He looked at the hip x-rays asked a lot of questions about my history of pain and family history of arthritis. He then sent me for an x-ray of SI-Joint and blood work.<\/p><p><strong>The blood work came back negative for the HLA B27 gene.<\/strong><\/p><p>However after reviewing the x-ray of the SI joint he told me I had Ankylosing Spondylitis (AS). That was the very first time I heard the name of the disease. He said he wanted to see my\u00a0SI Joint better and ordered a CAT scan. He told me that ankylosing spondylitis, a chronic inflammatory autoimmune disease that often causes fusion of the spine and related areas.<\/p><p>At age 45, I finally had a name for three decades of pain. The diagnosis was a relief. After years of wondering if I was just pushing myself too hard, or if it was something else, I knew my condition had a name.<\/p><p>My SI joints are completely fused and part of my lower back. After two years wait on a list, I had a hip replacement and I am dealing with shoulder issues as well. While one might think the disease has ended my active life, it is just the opposite.<\/p><p>While I no longer do high impact exercises such as running, exercise is actually part of my treatment routine, along with medication to control the pain and slow the disease\u2019s progression. \u00a0I attend physiotherapy and focuses on daily swimming and water exercises. I would like to start cycling again in the future.<\/p><p>When I do less, I actually hurt more. I find I need a mix \u2013 I\u2019m fortunate to work from home and my sit\/stand desk allows me to be mobile to avoid stiffness. I swim now, and try to walk as much as I can. I can\u2019t stop moving or being active. It\u2019s something I love and part of who I am.<\/p><p>I am very grateful to have a very supportive family. Arthritis makes the caregivers busier. My husband has become very knowledgeable about the disease and helps me with injections every two weeks. He also reminds me when I need to slow down or rest. \u00a0My three sons have been great to takeover or help with task whenever they know I am in a flare or not feeling well.<\/p><p>Although arthritis runs in my family, I had to learn about the disease once it became a part of my life. I educated myself, began volunteering for the Canadian Spondylitis Association, and fund raise for the Walk to Fight Arthritis in Halifax, Nova Scotia.<\/p><p>People still don\u2019t always associate my condition with arthritis, but most have been very kind and understanding. You never know how this disease affects you until you live it yourself. I want more people to be able to speak to their doctor about it so they can be diagnosed earlier and perhaps not go through the years of pain and uncertainly I faced.<\/p><p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p><p><strong>This story is a part of an ongoing feature on Young Adults, as part of our Arthritis Awareness Month. Read more stories <\/strong><a href=\"https:\/\/spondylitis.ca\/your-stories\/\"><strong>here<\/strong><\/a><strong>.<\/strong><\/p><p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[197],"tags":[369],"class_list":["post-4211","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-vos-histoires","tag-spondyloarthritis-fr"],"_links":{"self":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/4211","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/comments?post=4211"}],"version-history":[{"count":0,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/4211\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/media\/4215"}],"wp:attachment":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/media?parent=4211"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/categories?post=4211"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/tags?post=4211"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}