﻿{"id":4199,"date":"2022-08-15T12:41:28","date_gmt":"2022-08-15T17:41:28","guid":{"rendered":"https:\/\/sparthritis.ca\/?p=4199"},"modified":"2025-04-30T08:36:52","modified_gmt":"2025-04-30T13:36:52","slug":"le-recit-de-maryssa-jeune-adulte","status":"publish","type":"post","link":"https:\/\/sparthritis.ca\/fr\/le-recit-de-maryssa-jeune-adulte\/","title":{"rendered":"Le r\u00e9cit de Maryssa &#8211; Jeune Adulte"},"content":{"rendered":"<p>[et_pb_section fb_built=\u00a0\u00bb1&Prime; _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_post_title author=\u00a0\u00bboff\u00a0\u00bb date=\u00a0\u00bboff\u00a0\u00bb _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_post_title][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb2_3,1_3&Prime; _builder_version=\u00a0\u00bb4.19.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;][et_pb_column type=\u00a0\u00bb2_3&Prime; _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p><span>Ma vie avec l\u2019arthrite a commenc\u00e9 \u00e0 l\u2019\u00e2ge de 2 ans seulement. Des \u00e9ruptions cutan\u00e9es au hasard se sont transform\u00e9es en douleurs articulaires inexplicables et en fatigue. Apr\u00e8s de nombreux rendez-vous m\u00e9dicaux au fil des ans, une sp\u00e9cialiste du Hospital for Sick Children m\u2019a (enfin) diagnostiqu\u00e9e \u00e0 l\u2019\u00e2ge de 11 ans avec l\u2019arthrite juv\u00e9nile idiopathique et l\u2019arthrite avec enth\u00e9site. Essentiellement, j\u2019avais une \u00ab\u00a0maladie de vieillard\u00a0\u00bb\u2026 en tant qu\u2019enfant ! Je me suis vite rendu compte que ce n\u2019\u00e9tait que le d\u00e9but d\u2019une longue et douloureuse \u00e9volution, mais qui a \u00e9t\u00e9 positive malgr\u00e9 tout.<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_slider _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb body_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb background_enable_image=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_slide _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_image=\u00a0\u00bbhttps:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/Moi_hiking.jpg\u00a0\u00bb background_enable_image=\u00a0\u00bbon\u00a0\u00bb custom_padding=\u00a0\u00bb||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_transition=\u00a0\u00bbon\u00a0\u00bb][\/et_pb_slide][et_pb_slide _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_image=\u00a0\u00bbhttps:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/Moi_surfing.jpg\u00a0\u00bb background_enable_image=\u00a0\u00bbon\u00a0\u00bb custom_padding=\u00a0\u00bb300px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_transition=\u00a0\u00bbon\u00a0\u00bb][\/et_pb_slide][\/et_pb_slider][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p>Malgr\u00e9 les nombreux d\u00e9fis auxquels j\u2019ai d\u00fb faire face, je suis fi\u00e8re de dire que je suis venue \u00e0 bout de surmonter la douleur quotidienne, et ce, gr\u00e2ce \u00e0 des traitements, \u00e0 la physioth\u00e9rapie, \u00e0 des adaptations en salle de classe et \u00e0 des groupes de soutien. Ce n\u2019\u00e9tait pas facile, mais je me disais que je n\u2019avais pas le choix ; j\u2019\u00e9tais d\u00e9cid\u00e9e \u00e0 ne pas laisser cette maladie m\u2019emp\u00eacher de faire ce que feraient un enfant et un jeune adulte \u00ab\u00a0normal\u00a0\u00bb. Pour ce faire, je suis rest\u00e9e active dans plusieurs sports et activit\u00e9s. Je suis rest\u00e9e \u00e9galement tr\u00e8s concentr\u00e9e \u00e0 l\u2019\u00e9cole. Ma plus grande r\u00e9alisation jusqu\u2019\u00e0 pr\u00e9sent est l\u2019obtention de mon baccalaur\u00e9at \u00e8s arts en juin dernier. J\u2019ai obtenu une majeure en \u00c9tudes fran\u00e7aises et une double mineure en math\u00e9matiques et en sciences religieuses de l\u2019Universit\u00e9 Laurentienne \u00e0 Sudbury. J\u2019ai \u00e9galement re\u00e7u mon dipl\u00f4me avec distinction<span>\u00a0<\/span><em>Magna Cum Laude<\/em><span>\u00a0<\/span>pour ma moyenne pond\u00e9r\u00e9e cumulative de 9,65, ce qui m\u2019a permis de recevoir des bourses d\u2019\u00e9tudes. Pr\u00e9sentement, j\u2019\u00e9tudie pour devenir enseignante. Dans ma future carri\u00e8re, si jamais un enfant avec un handicap physique s\u2019assoit dans un de mes bancs, j\u2019esp\u00e8re pouvoir faire une diff\u00e9rence dans sa vie en comprenant le poids de ce qu\u2019il vit et surtout comment l\u2019aider.\u00a0<\/p>\n<div class=\"wp-block-image\"><\/div>\n<div class=\"wp-block-image\"><\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_2,1_2&Prime; _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/Maryssa3-1-683&#215;1024-1.jpg\u00a0\u00bb alt=\u00a0\u00bbKatie at the Beach\u00a0\u00bb title_text=\u00a0\u00bbMaryssa Dancing\u00a0\u00bb _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb height=\u00a0\u00bb610px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p>Bien que j\u2019aie toujours refus\u00e9 de laisser mon diagnostic m\u2019emp\u00eacher de faire quoi que ce soit, j\u2019avoue que j\u2019ai eu de nombreux obstacles \u00e0 surmonter dans ma vie de jeune adulte. Le plus remarquable de tous : convaincre tout le monde que mon diagnostic \u00e9tait r\u00e9el et que la douleur que je ressentais \u00e9tait r\u00e9elle. C\u2019est en silence que j\u2019ai souffert de cette maladie invisible. \u00c0 vrai dire, j\u2019ai pass\u00e9 une grande partie de ma vie \u00e0 essayer de prouver \u00e0 mes enseignants, \u00e0 mes entra\u00eeneurs et m\u00eame \u00e0 mes amis que les enfants pouvaient souffrir d\u2019arthrite eux aussi et que j\u2019avais besoin de mesures d\u2019adaptation afin d\u2019avoir les m\u00eames chances que mes pairs. C\u2019est la raison pour laquelle je crois que la sensibilisation \u00e0 l\u2019arthrite est tr\u00e8s importante.<\/p>\n<div class=\"wp-block-image\"><\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb0px|||||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.17.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p><span>Certes, c\u2019est gr\u00e2ce \u00e0 mon exp\u00e9rience avec l\u2019arthrite que je suis devenue une personne forte et pers\u00e9v\u00e9rante. Cependant, aucun enfant ou jeune adulte atteint d\u2019arthrite ne devrait vivre sans le soutien des personnes qui l\u2019entourent. Pour tout dire, une plus grande sensibilisation \u00e0 l\u2019arthrite chez les jeunes adultes est essentielle afin de vaincre les id\u00e9es fausses et les pr\u00e9jug\u00e9s qui lui sont attribu\u00e9s.\u00a0<\/span><\/p>\n<p>&nbsp;<\/p>\n<div class=\"AxqVh\">\n<div class=\"OPPzxe\">\n<p><c-wiz jsrenderer=\"FhfY2b\" class=\"sciAJc\" aria-labelledby=\"ucj-4\" role=\"region\" jsshadow=\"\" jsdata=\"deferred-c5\" data-p=\"%.@.]\" jscontroller=\"CTfTTd\" jsaction=\"eLAnNe:yz7ijf;F5MSFd:twqeXd;UgEtGb:EBJDh;qE2zJe:QgB2Sb;fBzasf:i3JB,YcUd2b;Qz4V0b:NmMuHe;\" data-node-index=\"4;0\" jsmodel=\"hc6Ubd\" c-wiz=\"\"><\/c-wiz><\/p>\n<div class=\"QcsUad BDJ8fb BLojaf\" jsaction=\"kqtH3e:SJbMmc,SsILKe,Jw8T5b,jsOQJc,MGLvSc,AZZyxc,o5MDW,RI4Bhc;eRlb5:gA82Bd,rcuQ6b,Wm5pEd;oBx8eb:T9xJPd,rcuQ6b;Aq4dme:T9xJPd,Otve6d,rcuQ6b,RHer4;h5CHLc:vFV4mf;lzRwDf:HrLPbb,o5MDW,RI4Bhc;vPLelb:uh6J1e;aEcCGe:B310db;fW6sPc:o5MDW;\" jscontroller=\"HruX3d\" jslog=\"167510;\">\n<div aria-live=\"polite\" class=\"usGWQd\" jsaction=\"copy:zVnXqd;\" jsname=\"r5xl4\">\n<div class=\"KkbLmb\" jsaction=\"rcuQ6b:uniPq;agoMJf:uniPq;PAwimb:fO5Jj;H1e5u:psubsc,xEIEwf,vvaHqf,xdbiQe,Omr8vc,aVxZJe;kjpCo:M9Rw9,ZIIOPb;wv82t:J6WBWe,rPLeTe;mzWwbd:uniPq;Aq4dme:TWxCtb; dblclick:wgdrZd\" jscontroller=\"Y8Tgfc\">\n<div class=\"lRu31\"><span class=\"HwtZe\" jsaction=\"mouseup:BR6jm\" jsname=\"jqKxS\" lang=\"fr\"><span jsaction=\"agoMJf:PFBcW;MZfLnc:P7O7bd;nt4Alf:pvnm0e,pfE8Hb,PFBcW;B01qod:dJXsye;H1e5u:iXtTIf;lYIUJf:hij5Wb;bmeZHc:iURhpf;Oxj3Xe:qAKMYb,yaf12d\" jsname=\"txFAF\" class=\"jCAhz ChMk0b\" jscontroller=\"Gn4SMb\"><span class=\"ryNqvb\" jsaction=\"click:E6Tfl,GFf3ac,tMZCfe; contextmenu:Nqw7Te,QP7LD; mouseout:Nqw7Te; mouseover:E6Tfl,c2aHje\" jsname=\"W297wb\">Cette histoire fait partie d&rsquo;un article en cours sur les jeunes adultes, dans le cadre de notre Mois de la sensibilisation \u00e0 l&rsquo;arthrite.<\/span><\/span> <span jsaction=\"agoMJf:PFBcW;MZfLnc:P7O7bd;nt4Alf:pvnm0e,pfE8Hb,PFBcW;B01qod:dJXsye;H1e5u:iXtTIf;lYIUJf:hij5Wb;bmeZHc:iURhpf;Oxj3Xe:qAKMYb,yaf12d\" jsname=\"txFAF\" class=\"jCAhz ChMk0b\" jscontroller=\"Gn4SMb\"><span class=\"ryNqvb\" jsaction=\"click:E6Tfl,GFf3ac,tMZCfe; contextmenu:Nqw7Te,QP7LD; mouseout:Nqw7Te; mouseover:E6Tfl,c2aHje\" jsname=\"W297wb\"><a href=\"\/fr\/category\/vos-histoires\/\">Lisez plus d&rsquo;histoires\u00a0ici<\/a>.<\/span><\/span><\/span><span class=\"ZSCsVd\"><\/span><\/div>\n<div aria-hidden=\"true\" class=\"UdTY9 WdefRb\" data-location=\"2\" jsaction=\"agoMJf:gXkcrf;h5CHLc:RHer4,P6Fjxb;rpiAHc:GitQp,fNH7he\" jscontroller=\"ZbunN\" jsname=\"c3wAjc\"><\/div>\n<\/div>\n<\/div>\n<\/div>\n<p>&nbsp;<\/p>\n<\/div>\n<\/div>\n<p><span style=\"font-size: 20px;\">\u00a0<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Ma vie avec l\u2019arthrite a commenc\u00e9 \u00e0 l\u2019\u00e2ge de 2 ans seulement. Des \u00e9ruptions cutan\u00e9es au hasard se sont transform\u00e9es en douleurs articulaires inexplicables et en fatigue. Apr\u00e8s de nombreux [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":1367,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p>[et_pb_section fb_built=\"1\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\"][et_pb_column _builder_version=\"4.17.4\" _module_preset=\"default\" type=\"4_4\"][et_pb_post_title _builder_version=\"4.17.4\" _module_preset=\"default\" author=\"off\" date=\"off\" hover_enabled=\"0\" sticky_enabled=\"0\"][\/et_pb_post_title][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\"1_2,1_2\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"1_2\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p><p>My journey with arthritis started at only 2 years of age. Random rashes turned into inexplicable sore joints and fatigue. Years and many medical appointments later, I was (finally) diagnosed at the age of 11 with Juvenile Idiopathic Arthritis as well as Enthesitis-related Arthritis by a specialist from Hospital for Sick Children. The bottom line: I had an \u201cold person\u2019s disease\u201d \u2026 as a kid! I was soon realizing that this was only the beginning of a long and painful yet positive journey.\u00a0<\/p><p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\"1_2\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_slider _builder_version=\"4.17.4\" _module_preset=\"default\" header_text_color=\"#FFFFFF\" body_text_color=\"#FFFFFF\" background_enable_image=\"off\" global_colors_info=\"{}\"][et_pb_slide _builder_version=\"4.17.4\" _module_preset=\"default\" background_image=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/Moi_hiking.jpg\" background_enable_image=\"on\" custom_padding=\"||||false|false\" global_colors_info=\"{}\" sticky_transition=\"on\"][\/et_pb_slide][et_pb_slide _builder_version=\"4.17.4\" _module_preset=\"default\" background_image=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/Moi_surfing.jpg\" background_enable_image=\"on\" custom_padding=\"300px||||false|false\" global_colors_info=\"{}\" sticky_transition=\"on\"][\/et_pb_slide][\/et_pb_slider][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p><p>Despite the many challenges I faced, I am proud to say that I persevered and pushed through the pain every day, with the help of treatments, physiotherapy, in-school accommodations, and support groups. It was not easy, but I felt as though I had no other choice; I was determined to not let this disease stop me from doing what a normal child and young adult would do. I remained active in various sports and activities. I also stayed very focussed in school. My biggest accomplishment to date is receiving my bachelor\u2019s degree in Arts last June. I graduated with a major in \u00c9tudes fran\u00e7aises (French Studies) and a double minor in Mathematics and Religious Studies from Laurentian University in Sudbury. I also graduated with distinctions Magna Cum Laude for my GPA of 9.65 allowing me to receive bursaries for school. I am currently studying to become a teacher. I hope that, as a schoolteacher, if ever a child with a physical handicap crosses my path, I will make a difference in their life by understanding the weight of what they are living through and how to help them.<\/p><div class=\"wp-block-image\">\u00a0<\/div><p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\"2_3,1_3\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"2_3\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_image src=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/Maryssa3-1-683x1024-1.jpg\" alt=\"Katie at the Beach\" title_text=\"Maryssa Dancing\" _builder_version=\"4.17.4\" _module_preset=\"default\" height=\"610px\" global_colors_info=\"{}\"][\/et_pb_image][\/et_pb_column][et_pb_column type=\"1_3\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p><p>Although I have always refused to let my diagnosis stand in my way, I admit that I had many hurdles to overcome in my young adult life. The biggest one of all: convincing everyone that my diagnosis was real and that my pain was real. I suffered in silence from this invisible illness. I spent a big portion of my life trying to prove to my teachers, to my coaches and even to my friends that children could get arthritis too and that I needed accommodations to have the same opportunities as my peers.\u00a0<\/p><p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" custom_padding=\"0px|||||\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p><p>This is why I believe that arthritis awareness is so important. I know that my journey with arthritis is what shaped me into the strong and determined person that I am today. However, no child or young adult affected by an arthritic condition should live without the support of the people around them. Greater awareness of arthritis in young adults is the key to conquer misconceptions and prejudice.\u00a0<\/p><p><strong>This story is a part of an ongoing feature on Young Adults, as part of our Arthritis Awareness Month. 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