{"id":38610,"date":"2025-11-26T13:52:08","date_gmt":"2025-11-26T18:52:08","guid":{"rendered":"https:\/\/sparthritis.ca\/?p=38610"},"modified":"2025-12-09T10:03:44","modified_gmt":"2025-12-09T15:03:44","slug":"cinq-minutes-a-la-fois-lhistoire-de-kayleigh-et-de-laxspa","status":"publish","type":"post","link":"https:\/\/sparthritis.ca\/fr\/cinq-minutes-a-la-fois-lhistoire-de-kayleigh-et-de-laxspa\/","title":{"rendered":"Cinq minutes \u00e0 la fois \u2013 Kayleigh raconte son parcours avec la spondylarthrite axiale"},"content":{"rendered":"

[et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb da_disable_devices=\u00a0\u00bboff|off|off\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb da_is_popup=\u00a0\u00bboff\u00a0\u00bb da_exit_intent=\u00a0\u00bboff\u00a0\u00bb da_has_close=\u00a0\u00bbon\u00a0\u00bb da_alt_close=\u00a0\u00bboff\u00a0\u00bb da_dark_close=\u00a0\u00bboff\u00a0\u00bb da_not_modal=\u00a0\u00bbon\u00a0\u00bb da_is_singular=\u00a0\u00bboff\u00a0\u00bb da_with_loader=\u00a0\u00bboff\u00a0\u00bb da_has_shadow=\u00a0\u00bbon\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]\u25b6 Regardez : Kayleigh raconte son parcours avec la spondylarthrite axiale et comment elle vit cinq minutes \u00e0 la fois.<\/a><\/p>\n

Une conversation honn\u00eate anim\u00e9e par Brenda Delodder, directrice g\u00e9n\u00e9rale de l’Association canadienne de spondylarthrite.[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

\u00c0\u00a0<\/span>propos<\/span>\u00a0de la conversation\u00a0<\/span><\/span>\u00a0<\/span><\/strong><\/h3>\n
Dans cette vid\u00e9o, Brenda Delodder, directrice g\u00e9n\u00e9rale de l’Association canadienne de spondylarthrite, s’entretient avec Kayleigh, une jeune adulte r\u00e9cemment diagnostiqu\u00e9e avec une spondylarthrite axiale (axSpA). Kayleigh partage son parcours de plusieurs ann\u00e9es, depuis ses douleurs lombaires et sa fatigue inexpliqu\u00e9es jusqu’\u00e0 l’obtention d’un diagnostic, ainsi que l’impact \u00e9motionnel de vivre avec une maladie chronique invisible. Elle explique comment la maladie a affect\u00e9 son travail, ses loisirs, sa sant\u00e9 mentale et son identit\u00e9, mais aussi comment le soutien, l’autonomie sociale et la compassion envers soi-m\u00eame l’ont aid\u00e9e \u00e0 s’adapter. \u00c0 travers son histoire, elle offre une validation et des encouragements pratiques \u00e0 d’autres personnes qui viennent d’\u00eatre diagnostiqu\u00e9es ou qui sont encore \u00e0 la recherche de r\u00e9ponses. <\/p>\n
[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
Faits\u00a0<\/span>marquants<\/span>\u00a0de\u00a0<\/span>l’histoire<\/span>\u00a0de Kayleigh<\/span><\/span>\u00a0<\/span><\/strong><\/h3>\n
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Les\u00a0<\/span>sympt\u00f4mes<\/span>\u00a0<\/span>sont<\/span>\u00a0<\/span>apparus<\/span>\u00a0<\/span>t\u00f4t<\/span>\u00a0et\u00a0<\/span>ont<\/span>\u00a0<\/span>\u00e9t\u00e9<\/span>\u00a0mal\u00a0<\/span>compris<\/span>.<\/span><\/span>\u00a0<\/span><\/strong><\/p>\n
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Des\u00a0<\/span><\/span>douleurs<\/span>\u00a0<\/span>chroniques au bas du dos\u00a0<\/span><\/span>ont<\/span>\u00a0<\/span><\/span>commenc\u00e9<\/span>\u00a0<\/span>vers\u00a0<\/span><\/span>l’\u00e2ge<\/span>\u00a0<\/span>de 19-20\u00a0<\/span><\/span>ans<\/span>,\u00a0<\/span><\/span>alors<\/span>\u00a0<\/span><\/span>qu’elle<\/span>\u00a0<\/span><\/span>travaillait<\/span>\u00a0<\/span><\/span>comme<\/span>\u00a0<\/span>aide-<\/span>soignante<\/span>.\u00a0<\/span><\/span>\u00a0<\/span><\/p>\n<\/li>\n
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La\u00a0<\/span><\/span>douleur<\/span>\u00a0<\/span>et la fatigue\u00a0<\/span>ont<\/span>\u00a0<\/span><\/span>\u00e9t\u00e9<\/span>\u00a0<\/span><\/span>consid\u00e9r\u00e9es<\/span>\u00a0<\/span><\/span>comme<\/span> <\/span>\u00ab\u00a0<\/span><\/span>une<\/span>\u00a0<\/span>simple\u00a0<\/span><\/span>sciatique<\/span>\u00a0<\/span>\u00bb\u00a0 <\/span><\/span>ou<\/span>\u00a0<\/span><\/span>une<\/span>\u00a0<\/span>usure\u00a0<\/span><\/span>normale<\/span>.<\/span><\/p>\n<\/li>\n
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Des\u00a0<\/span><\/span>ann\u00e9es<\/span>\u00a0<\/span>de consultations, de\u00a0<\/span><\/span>physioth\u00e9rapie<\/span>\u00a0<\/span>et de\u00a0<\/span><\/span>m\u00e9dicaments<\/span>\u00a0<\/span>sans grand\u00a0<\/span><\/span>soulagement<\/span>.<\/span><\/span>\u00a0<\/span><\/p>\n<\/li>\n<\/ul>\n<\/li>\n
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Le diagnostic\u00a0<\/span>a<\/span>\u00a0<\/span>apport\u00e9<\/span>\u00a0\u00e0 la\u00a0<\/span>fois<\/span>\u00a0<\/span>clart\u00e9<\/span>\u00a0et\u00a0<\/span>r\u00e9alit\u00e9<\/span>.<\/span><\/span>\u00a0<\/span><\/strong><\/p>\n
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Il a\u00a0<\/span><\/span>fallu<\/span>\u00a0<\/span>4 \u00e0 6\u00a0<\/span><\/span>ans<\/span>\u00a0<\/span>pour\u00a0<\/span><\/span>obtenir<\/span>\u00a0<\/span><\/span>enfin<\/span>\u00a0<\/span><\/span>un diagnostic<\/span>\u00a0<\/span>de\u00a0<\/span><\/span>spondylarthrite<\/span>\u00a0<\/span><\/span>axiale<\/span>\u00a0<\/span>(<\/span>axSpA<\/span>).\u00a0<\/span><\/span>\u00a0<\/span><\/p>\n<\/li>\n
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Le diagnostic a\u00a0<\/span><\/span>\u00e9t\u00e9<\/span>\u00a0<\/span><\/span>une<\/span>\u00a0<\/span>confirmation, la\u00a0<\/span><\/span>preuve<\/span>\u00a0<\/span><\/span>que<\/span>\u00a0<\/span>la\u00a0<\/span><\/span>douleur<\/span>\u00a0<\/span><\/span>\u00e9tait<\/span>\u00a0<\/span><\/span>r\u00e9elle<\/span>.\u00a0<\/span><\/span>\u00a0<\/span><\/p>\n<\/li>\n
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Mais\u00a0<\/span><\/span>c’\u00e9tait<\/span>\u00a0<\/span><\/span>aussi<\/span>\u00a0<\/span>un sentiment doux-<\/span>amer<\/span>,\u00a0<\/span><\/span>sachant<\/span>\u00a0<\/span><\/span>qu’il<\/span>\u00a0<\/span><\/span>s’agissait<\/span>\u00a0<\/span><\/span>d’une<\/span>\u00a0<\/span><\/span>maladie <\/span>chronique \u00e0 un jeune\u00a0<\/span><\/span>\u00e2ge<\/span>.<\/span><\/span>\u00a0<\/span><\/p>\n<\/li>\n<\/ul>\n<\/li>\n
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Impact<\/span>\u00a0sur le travail et la vie\u00a0<\/span>quotidienne<\/span><\/span>\u00a0<\/span><\/strong><\/p>\n
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Elle a d\u00fb renoncer \u00e0 des objectifs ambitieux, comme apprendre le snowboard.<\/p>\n<\/li>\n
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Elle continue d’appr\u00e9cier l’art, mais s’adapte en alternant les positions assise et debout et en prenant des pauses.<\/p>\n<\/li>\n
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Elle g\u00e8re le gonflement de ses doigts en modifiant la fa\u00e7on dont elle tient son stylet ou son stylo.<\/p>\n<\/li>\n<\/ul>\n
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Elle apprend \u00e0 \u00e9couter son corps.<\/strong><\/p>\n
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La douleur, le stress et les \u00e9motions sont \u00e9troitement li\u00e9s : forcer son corps conduit \u00e0 des pouss\u00e9es.<\/p>\n<\/li>\n
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Elle donne d\u00e9sormais la priorit\u00e9 au repos sans culpabiliser, reconnaissant que la fatigue est un signal et non une faiblesse.<\/p>\n<\/li>\n<\/ul>\n<\/li>\n
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Le soutien fait la diff\u00e9rence.<\/strong><\/p>\n
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Son partenaire et sa famille l’aident \u00e0 valider son exp\u00e9rience et l’encouragent \u00e0 se d\u00e9fendre.<\/p>\n<\/li>\n
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Le fait d’\u00eatre invit\u00e9e \u00e0 partager son histoire montre que chaque exp\u00e9rience m\u00e9rite d’\u00eatre entendue.<\/p>\n<\/li>\n<\/ul>\n<\/li>\n
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Une histoire qui d\u00e9passe le simple diagnostic<\/strong><\/p>\n
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Le parcours de Kayleigh refl\u00e8te ce \u00e0 quoi sont confront\u00e9es de nombreuses personnes atteintes de maladies invisibles.<\/p>\n<\/li>\n
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La spondylarthrite n’est pas rare : plus d’un demi-million de Canadiens en sont atteints.<\/p>\n<\/li>\n
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La communaut\u00e9, l’\u00e9ducation et la pers\u00e9v\u00e9rance sont essentielles pour bien vivre avec une maladie chronique.<\/p>\n<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n
[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
Les conseils de Kayleigh<\/span><\/span>\u00a0<\/span><\/strong><\/h3>\n
Kayleigh nous\u00a0<\/span><\/span>rappelle<\/span>\u00a0<\/span><\/span>que<\/span>\u00a0<\/span>vivre avec un nouveau diagnostic\u00a0<\/span><\/span>peut<\/span>\u00a0<\/span><\/span>sembler<\/span>\u00a0<\/span><\/span>accablant<\/span>,\u00a0<\/span><\/span>mais<\/span>\u00a0<\/span><\/span>qu’il<\/span>\u00a0<\/span><\/span>n’est<\/span>\u00a0<\/span>pas\u00a0<\/span><\/span>n\u00e9cessaire<\/span>\u00a0<\/span>de tout affronter d’un seul coup. Son message repose sur\u00a0<\/span><\/span>l’autonomie<\/span>\u00a0<\/span><\/span>sociale<\/span>, la patience et\u00a0<\/span><\/span>l’\u00e9coute<\/span>\u00a0<\/span>de son corps.\u00a0<\/span><\/span>Voici<\/span>\u00a0<\/span><\/span>ce<\/span>\u00a0<\/span><\/span>qu’elle<\/span>\u00a0<\/span><\/span>souhaite<\/span>\u00a0<\/span>faire passer\u00a0<\/span><\/span>comme<\/span>\u00a0<\/span><\/span>message :<\/span><\/span>\u00a0<\/span><\/p>\n
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Vous\u00a0<\/span>m\u00e9ritez<\/span>\u00a0<\/span>mieux<\/span>\u00a0<\/span>que<\/span>\u00a0des\u00a0<\/span>douleurs<\/span>\u00a0<\/span>constantes<\/span>.\u00a0<\/span><\/span> <\/span><\/strong><\/p>\n
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<\/span><\/strong>Continuez<\/span>\u00a0<\/span>\u00e0\u00a0<\/span><\/span>chercher<\/span>\u00a0<\/span>des\u00a0<\/span><\/span>r\u00e9ponses<\/span>\u00a0<\/span>et des\u00a0<\/span><\/span>traitements<\/span>\u00a0<\/span>qui vous\u00a0<\/span><\/span>aident<\/span>\u00a0<\/span>:\u00a0<\/span><\/span>votre<\/span>\u00a0<\/span><\/span>confort<\/span>\u00a0<\/span>et\u00a0<\/span><\/span>votre<\/span>\u00a0<\/span><\/span>qualit\u00e9<\/span>\u00a0<\/span>de vie\u00a0<\/span><\/span>sont<\/span>\u00a0<\/span><\/span>importants<\/span>.<\/span><\/span>\u00a0<\/span><\/p>\n<\/li>\n<\/ul>\n<\/li>\n
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\u00c9coutez<\/span>\u00a0<\/span>votre<\/span>\u00a0corps sans\u00a0<\/span>culpabiliser<\/span>.<\/span><\/span> <\/span><\/strong><\/p>\n
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<\/span><\/strong>Si vous\u00a0<\/span><\/span>avez<\/span>\u00a0<\/span><\/span>besoin<\/span>\u00a0<\/span>de repos,\u00a0<\/span><\/span>prenez<\/span>-le. La\u00a0<\/span><\/span>douleur<\/span>\u00a0<\/span>et la fatigue\u00a0<\/span><\/span>sont<\/span>\u00a0<\/span>des\u00a0<\/span><\/span>signaux<\/span>, pas des\u00a0<\/span><\/span>\u00e9checs<\/span>.<\/span><\/span>\u00a0<\/span><\/p>\n<\/li>\n<\/ul>\n<\/li>\n
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Divisez<\/span>\u00a0la\u00a0<\/span>journ\u00e9e<\/span>\u00a0<\/span>en<\/span>\u00a0petites \u00e9tapes.<\/span><\/span>\u00a0<\/span><\/strong><\/p>\n
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<\/span>Lorsque<\/span>\u00a0<\/span>les\u00a0<\/span><\/span>t\u00e2ches<\/span>\u00a0<\/span>vous\u00a0<\/span><\/span>semblent<\/span>\u00a0<\/span><\/span>insurmontables<\/span>,\u00a0<\/span><\/span>concentrez<\/span>-vous\u00a0<\/span><\/span>uniquement<\/span>\u00a0<\/span>sur les cinq minutes \u00e0\u00a0<\/span><\/span>venir<\/span>. Les\u00a0<\/span><\/span>petites<\/span>\u00a0<\/span>actions\u00a0<\/span><\/span>m\u00e8nent<\/span>\u00a0<\/span>au\u00a0<\/span><\/span>progr\u00e8s<\/span>.<\/span><\/span>\u00a0<\/span><\/p>\n<\/li>\n<\/ul>\n<\/li>\n
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Adaptez<\/span>-vous au lieu\u00a0<\/span>d’abandonner<\/span>.<\/span><\/span>\u00a0<\/span><\/strong><\/p>\n
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Vous\u00a0<\/span><\/span>devrez<\/span>\u00a0<\/span><\/span>peut-\u00eatre<\/span>\u00a0<\/span>faire les choses\u00a0<\/span><\/span>diff\u00e9remment<\/span>,\u00a0<\/span><\/span>mais<\/span>\u00a0<\/span>pas les\u00a0<\/span><\/span>abandonner<\/span>\u00a0<\/span><\/span>compl\u00e8tement<\/span>.<\/span><\/span>\u00a0<\/span><\/p>\n<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n
Sa plus grande\u00a0<\/span><\/span>le\u00e7on<\/span>\u00a0<\/span>? Vous\u00a0<\/strong><\/span>\u00eates<\/span>\u00a0plus fort\u00a0<\/span>que<\/span>\u00a0vous ne le\u00a0<\/span>pensez<\/span><\/strong>. Avec du\u00a0<\/span><\/span>soutien<\/span>, de la\u00a0<\/span><\/span>pers\u00e9v\u00e9rance<\/span>\u00a0<\/span>et de la compassion\u00a0<\/span><\/span>envers<\/span>\u00a0<\/span>vous-<\/span>m\u00eame<\/span>, il est possible de\u00a0<\/span><\/span>construire<\/span>\u00a0<\/span><\/span>une<\/span>\u00a0<\/span>vie qui\u00a0<\/span><\/span>s’adapte<\/span>\u00a0<\/span>\u00e0\u00a0<\/span><\/span>votre<\/span>\u00a0<\/span>\u00e9tat, et non qui vous est hostile.<\/span><\/span>\u00a0<\/span><\/p>\n
[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
Vid\u00e9o disponible uniquement en anglais<\/span><\/p>\n
[\/et_pb_text][et_pb_video src=\u00a0\u00bbhttps:\/\/www.youtube.com\/watch?v=Rnm9RSKTlt0″ module_id=\u00a0\u00bbvideo_element\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb-10px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_video][et_pb_text disabled_on=\u00a0\u00bbon|on|on\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb disabled=\u00a0\u00bbon\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
\ud83d\udd17\u00a0Follow Ken on Social:<\/strong><\/h3>\n
https:\/\/www.youtube.com\/@arthritic.adventures<\/a> https:\/\/www.instagram.com\/arthritic.adventures<\/a> https:\/\/www.tiktok.com\/@arthritic.adventures<\/a><\/span>
\n[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb25px||||false|false\u00a0\u00bb border_width_top=\u00a0\u00bb2px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
Vous souhaitez d\u00e9couvrir d’autres t\u00e9moignages de patients ? Cliquez ici.<\/a><\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"
\u25b6 Regardez : Kayleigh raconte son parcours avec la spondylarthrite axiale et comment elle vit cinq minutes \u00e0 la fois. Une conversation honn\u00eate anim\u00e9e par Brenda Delodder, directrice g\u00e9n\u00e9rale de […]<\/p>\n","protected":false},"author":6,"featured_media":38529,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"
[et_pb_section fb_built=\"1\" _builder_version=\"4.27.4\" _module_preset=\"default\" da_disable_devices=\"off|off|off\" locked=\"off\" global_colors_info=\"{}\" da_is_popup=\"off\" da_exit_intent=\"off\" da_has_close=\"on\" da_alt_close=\"off\" da_dark_close=\"off\" da_not_modal=\"on\" da_is_singular=\"off\" da_with_loader=\"off\" da_has_shadow=\"on\"][et_pb_row _builder_version=\"4.27.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.27.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.27.4\" _module_preset=\"default\" global_colors_info=\"{}\"]\u25b6 Watch: Kaleigh AxSpA Story, and how she takes it five minutes at a time.<\/a><\/p>
A candid conversation hosted by Brenda Dauder, Executive Director of the Canadian Spondyloarthritis Association.
[\/et_pb_text][et_pb_text _builder_version=\"4.27.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p>
About the Conversation<\/strong><\/h3>
In this video, Canadian Spondyloarthritis Association executive director Brenda Dauder speaks with Kaylee, a young adult recently diagnosed with axial spondyloarthritis (axSpA). Kaylee shares her years-long journey from unexplained lower back pain and fatigue to finally getting a diagnosis, and the emotional impact of living with an invisible, chronic illness. She talks about how the disease has affected her work, hobbies, mental health, and identity\u2014but also how support, self-advocacy, and self-compassion have helped her adapt. Through her story, she offers validation and practical encouragement to others who are newly diagnosed or still searching for answers.<\/p>
[\/et_pb_text][et_pb_text _builder_version=\"4.27.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p>
Highlights from Kayleigh's Story<\/strong><\/h3>Symptoms started early and were misunderstood<\/strong><\/p>
Chronic lower back pain began around age 19\u201320 while working as a PSW<\/p><\/li>
Pain and fatigue were dismissed as \u201cjust sciatica\u201d or normal wear and tear<\/p><\/li>
Years of appointments, physiotherapy, and medications with little relief<\/p><\/li><\/ul><\/li>
Diagnosis brought both clarity and reality<\/strong><\/p>
Took 4\u20136 years to finally receive an axial spondyloarthritis (axSpA) diagnosis<\/p><\/li>
Diagnosis felt validating\u2014proof the pain was real<\/p><\/li>
Also bittersweet, knowing it\u2019s a lifelong condition at a young age<\/p><\/li><\/ul><\/li>
Impact on work and everyday life<\/strong><\/p>
Symptoms affected her ability to work, leading to job loss during a stressful time<\/p><\/li>
Now has to choose work that fits her physical limitations<\/p><\/li>
Daily tasks require pacing\u2014some chores get done, others wait, and that\u2019s okay<\/p><\/li><\/ul><\/li>
Adapting hobbies to her new reality<\/strong><\/p>
Had to let go of high-impact goals like learning to snowboard<\/p><\/li>
Still enjoys art but adapts by alternating sitting\/standing and taking breaks<\/p><\/li>
Deals with finger swelling by modifying how she holds her stylus or pen<\/p><\/li><\/ul><\/li>
Learning to listen to her body<\/strong><\/p>
Pain, stress, and emotions are closely linked\u2014pushing through leads to flare-ups<\/p><\/li>
Now prioritizes rest without guilt, recognizing that fatigue is a signal, not a weakness<\/p><\/li><\/ul><\/li>
Support makes a difference<\/strong><\/p>
Her partner and family help validate her experience and encourage self-advocacy<\/p><\/li>
Being invited to share her story shows that every experience is worth being heard<\/p><\/li><\/ul><\/li>
A story bigger than one diagnosis<\/strong><\/p>
Kaylee\u2019s journey reflects what many with invisible illnesses face<\/p><\/li>
Spondyloarthritis isn\u2019t rare\u2014more than half a million Canadians live with it<\/p><\/li>
Community, education, and persistence are key to living well with chronic disease<\/p><\/li><\/ul><\/li><\/ul>
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Advice from Kaylee<\/strong><\/h3>
Kaylee reminds us that living with a new diagnosis can feel overwhelming, but you don\u2019t have to face it all at once. Her message is rooted in self-advocacy, patience, and learning to listen to your body. Here\u2019s what she wants others to know:<\/p>
You deserve better than constant pain.<\/strong>
Keep pushing for answers and treatment that help\u2014your comfort and quality of life matter.<\/p><\/li>
Listen to your body without guilt.<\/strong>
If you need rest, take it. Pain and fatigue are signals, not failures.<\/p><\/li>
Break the day into small steps.<\/strong>
When tasks feel overwhelming, focus on just the next five minutes. Small actions build progress.<\/p><\/li>
Adapt instead of giving things up.<\/strong>
You may need to do things differently, not stop doing them altogether.<\/p><\/li><\/ul>
Her biggest takeaway? You\u2019re stronger than you think.<\/strong> With support, persistence, and self-compassion, it\u2019s possible to build a life that works with your condition\u2014not against it.<\/p>
[\/et_pb_text][et_pb_video src=\"https:\/\/www.youtube.com\/watch?v=Rnm9RSKTlt0\" module_id=\"video_element\" _builder_version=\"4.27.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_video][et_pb_text disabled_on=\"on|on|on\" _builder_version=\"4.27.4\" _module_preset=\"default\" disabled=\"on\" global_colors_info=\"{}\"]<\/p>
\ud83d\udd17\u00a0Follow Ken on Social:<\/strong><\/h3>
https:\/\/www.youtube.com\/@arthritic.adventures<\/a> https:\/\/www.instagram.com\/arthritic.adventures<\/a> https:\/\/www.tiktok.com\/@arthritic.adventures<\/a><\/span>
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