[et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb min_height=\u00a0\u00bb391.9px\u00a0\u00bb custom_margin=\u00a0\u00bb-50px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb-50px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_post_title author=\u00a0\u00bboff\u00a0\u00bb date=\u00a0\u00bboff\u00a0\u00bb _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_post_title][et_pb_text _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
Est-ce que quelqu\u2019un vous a d\u00e9j\u00e0 demand\u00e9 comment c\u2019est de vivre avec une maladie spondylarthritique et vous \u00e9tiez juste \u00e0 court de mots ?<\/p>\n
Parfois, on a l\u2019impression que la SpA est impossible \u00e0 expliquer et que les gens de l\u2019ext\u00e9rieur ne comprendront jamais. Certains disent \u00ab si vous savez, vous savez \u00bb, mais en r\u00e9alit\u00e9, m\u00eame ceux qui vivent avec la SpA ont des exp\u00e9riences diff\u00e9rentes et ressentent diff\u00e9rents types de douleur et de sensations.<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/sparthritis.ca\/wp-content\/uploads\/2023\/01\/describe-2.png\u00a0\u00bb alt=\u00a0\u00bbD\u00e9crivez vos sympt\u00f4mes 2″ title_text=\u00a0\u00bbD\u00e9crivez vos sympt\u00f4mes 2″ _builder_version=\u00a0\u00bb4.19.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
Expliquer votre exp\u00e9rience quotidienne en utilisant la th\u00e9orie de la cuill\u00e8re peut \u00eatre b\u00e9n\u00e9fique pour aider les gens autour de vous \u00e0 comprendre votre exp\u00e9rience. La th\u00e9orie de la cuill\u00e8re est une m\u00e9taphore cr\u00e9\u00e9e par Christine Miserandino pour d\u00e9crire son lupus, et maintenant, elle est utilis\u00e9e par ceux qui vivent avec une maladie chronique pour offrir une repr\u00e9sentation visuelle de l\u2019\u00e9puisement qui vient avec une maladie chronique.<\/p>\n
Dans cette m\u00e9taphore, les cuill\u00e8res repr\u00e9sentent une unit\u00e9 d\u2019\u00e9nergie, mentale ou physique, disponible pour les t\u00e2ches quotidiennes. Les personnes souffrant de maladies chroniques, appel\u00e9es \u00ab cuiller\u00e9es \u00bb, utilisent ces unit\u00e9s d\u2019\u00e9nergie plus rapidement en raison de la fatigue et d\u2019autres facteurs, et par cons\u00e9quent n\u2019ont plus de cuill\u00e8res plus t\u00f4t dans la journ\u00e9e que les personnes \u00ab en bonne sant\u00e9 \u00bb. Pour cette raison, de nombreuses \u00ab\u00a0cuiller\u00e9es\u00a0\u00bb doivent planifier leur journ\u00e9e en fonction de la quantit\u00e9 d\u2019\u00e9nergie dont elles disposent, en veillant \u00e0 ne pas utiliser toutes leurs cuill\u00e8res trop rapidement.<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/sparthritis.ca\/wp-content\/uploads\/2023\/01\/describe-2.png\u00a0\u00bb alt=\u00a0\u00bbD\u00e9crivez vos sympt\u00f4mes 2″ title_text=\u00a0\u00bbD\u00e9crivez vos sympt\u00f4mes 2″ _builder_version=\u00a0\u00bb4.19.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
Si vos proches ont du mal \u00e0 comprendre cela, vous pouvez sortir physiquement une douzaine de cuill\u00e8res et les d\u00e9poser sur la table. Retirez-en 1 si vous n\u2019avez pas bien dormi la nuit derni\u00e8re, si vous avez oubli\u00e9 de prendre vos m\u00e9dicaments ou si vous avez saut\u00e9 un repas et retirez 4 cuill\u00e8res si vous \u00eates dans une pouss\u00e9e. Disons qu\u2019il ne vous reste plus que 7 cuill\u00e8res, comment allez-vous les utiliser ? Des activit\u00e9s comme aller \u00e0 l\u2019\u00e9cole \/ au travail ou faire l\u2019\u00e9picerie utilisent 4 cuill\u00e8res, faire un repas en utilise 3, se baigner ou se coiffer prend 2 cuill\u00e8res\u2026 Combien de temps vous faudra-t-il pour \u00eatre \u00e0 court de cuill\u00e8res ?<\/p>\n
Si vous cherchez un autre moyen de faire passer le message, nous avons demand\u00e9 aux personnes vivant avec la SpA quelles m\u00e9taphores elles utilisent pour d\u00e9crire leurs sympt\u00f4mes. N\u2019h\u00e9sitez pas \u00e0 les utiliser pour vous-m\u00eame ou \u00e0 les adapter \u00e0 votre exp\u00e9rience.<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/sparthritis.ca\/wp-content\/uploads\/2023\/01\/describe-3.png\u00a0\u00bb alt=\u00a0\u00bbD\u00e9crivez vos sympt\u00f4mes 1″ title_text=\u00a0\u00bbD\u00e9crivez vos sympt\u00f4mes 3″ _builder_version=\u00a0\u00bb4.19.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.19.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.19.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
Nous avons m\u00eame cr\u00e9\u00e9 un image vide pour vous de remplir et de partager sur les r\u00e9seaux sociaux! Faites un clic droit sur l\u2019image et s\u00e9lectionnez \u201cEnregistrer l\u2019image sous\u201d pour t\u00e9l\u00e9charger et ajouter votre propre texte!<\/p>\n
Image vierge – T\u00e9l\u00e9charger ici<\/a><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/sparthritis.ca\/wp-content\/uploads\/2023\/01\/describe-4.png\u00a0\u00bb alt=\u00a0\u00bbBlank Comic\u00a0\u00bb title_text=\u00a0\u00bbdescribe-4″ _builder_version=\u00a0\u00bb4.19.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_divider _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_divider][et_pb_text _builder_version=\u00a0\u00bb4.19.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n Int\u00e9ress\u00e9 par plus de ressources pour les jeunes adultes\u00a0?<\/span><\/span> <\/span>Cliquez ici<\/span><\/span><\/a><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" Est-ce que quelqu\u2019un vous a d\u00e9j\u00e0 demand\u00e9 comment c\u2019est de vivre avec une maladie spondylarthritique et vous \u00e9tiez juste \u00e0 court de mots ? Parfois, on a l\u2019impression que la […]<\/p>\n","protected":false},"author":6,"featured_media":2504,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":" [et_pb_section fb_built=\"1\" _builder_version=\"4.17.4\" _module_preset=\"default\" min_height=\"391.9px\" custom_margin=\"-50px||||false|false\" global_colors_info=\"{}\"][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" custom_margin=\"-50px||||false|false\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_post_title author=\"off\" date=\"off\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_post_title][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p> Has someone ever asked you what it feels like to live with a spondyloarthritic condition and you\u2019re just at a loss for words?<\/p> Sometimes it feels like SpA is impossible to explain and people on the outside will never understand. Some say \u201cif you know, you know\u201d but in reality even those living with SpA have different experiences and feel different types of pain and sensations.<\/p> [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_image src=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/1-4-1024x1024-1.png\" alt=\"People describing SpA Symptoms\" title_text=\"People describing SpA Symptoms\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p> Explaining your daily experience using The Spoon Theory may be beneficial to help people around you understand your experience. The Spoon Theory is a metaphor that was created by Christine Miserandino, who used it to describe her lupus, and now it\u2019s used by those living with chronic illness to provide a visual representation of how draining it can be to live with a chronic illness.<\/p> In this metaphor, spoons represent a unit of energy, mental or physical, available for daily tasks. Chronically ill people, termed as \u201cspoonies,\u201d use up these units of energy faster due to fatigue and other factors, and are consequently out of spoons earlier in the day than \u201chealthy\u201d people. For this reason, many spoonies have to plan out their day around the amount of energy they have, making sure not to use up all their spoons too quickly.<\/p> [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_image src=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/2-4-1024x1024-1.png\" alt=\"People describing SpA Symptoms\" title_text=\"People describing SpA Symptoms\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p> If your loved ones are having a hard time understanding this, you can physically take out a dozen spoons on the table; remove 1 if you didn\u2019t sleep well last night, forgot to take your meds or skipped a meal and take away 4 spoons if you\u2019re flaring. Say you only have 7 spoons left, how are you going to use them? Things like going to school\/ work or grocery shopping uses 4 spoons, making a meal uses 3, bathing or styling your hair takes 2 spoons\u2026 How long will it take you to be out of spoons?<\/p> If you\u2019re looking for another way to get the message across, we asked people living with SpA what metaphors they use to describe their symptoms. Feel free to use them for yourself or adapt them to your experience.<\/p> [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_image src=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/3-5-1024x1024-1.png\" alt=\"People describing SpA Symptoms\" title_text=\"People describing SpA Symptoms\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p> [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p> We\u2019ve even created a blank one for you to fill out and share on social media! Right Click on the image and select \u201cSave Image As\u201d or click on the below to download and add your own text!<\/p>Create your own!<\/strong><\/h3>
![Image vierge – T\u00e9l\u00e9charger ici<\/a><\/p>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/sparthritis.ca\/wp-content\/uploads\/2023\/01\/describe-4.png\u00a0\u00bb alt=\u00a0\u00bbBlank Comic\u00a0\u00bb title_text=\u00a0\u00bbdescribe-4″ _builder_version=\u00a0\u00bb4.19.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_divider _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_divider][et_pb_text _builder_version=\u00a0\u00bb4.19.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\nInt\u00e9ress\u00e9 par plus de ressources pour les jeunes adultes\u00a0?<\/span><\/span> <\/span>Cliquez ici<\/span><\/span><\/a><\/p>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"Est-ce que quelqu\u2019un vous a d\u00e9j\u00e0 demand\u00e9 comment c\u2019est de vivre avec une maladie spondylarthritique et vous \u00e9tiez juste \u00e0 court de mots ? Parfois, on a l\u2019impression que la […]<\/p>\n","protected":false},"author":6,"featured_media":2504,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"[et_pb_section fb_built=\"1\" _builder_version=\"4.17.4\" _module_preset=\"default\" min_height=\"391.9px\" custom_margin=\"-50px||||false|false\" global_colors_info=\"{}\"][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" custom_margin=\"-50px||||false|false\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_post_title author=\"off\" date=\"off\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_post_title][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p>Has someone ever asked you what it feels like to live with a spondyloarthritic condition and you\u2019re just at a loss for words?<\/p>Sometimes it feels like SpA is impossible to explain and people on the outside will never understand. Some say \u201cif you know, you know\u201d but in reality even those living with SpA have different experiences and feel different types of pain and sensations.<\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_image src=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/1-4-1024x1024-1.png\" alt=\"People describing SpA Symptoms\" title_text=\"People describing SpA Symptoms\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p>Explaining your daily experience using The Spoon Theory may be beneficial to help people around you understand your experience. The Spoon Theory is a metaphor that was created by Christine Miserandino, who used it to describe her lupus, and now it\u2019s used by those living with chronic illness to provide a visual representation of how draining it can be to live with a chronic illness.<\/p>In this metaphor, spoons represent a unit of energy, mental or physical, available for daily tasks. Chronically ill people, termed as \u201cspoonies,\u201d use up these units of energy faster due to fatigue and other factors, and are consequently out of spoons earlier in the day than \u201chealthy\u201d people. For this reason, many spoonies have to plan out their day around the amount of energy they have, making sure not to use up all their spoons too quickly.<\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_image src=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/2-4-1024x1024-1.png\" alt=\"People describing SpA Symptoms\" title_text=\"People describing SpA Symptoms\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p>If your loved ones are having a hard time understanding this, you can physically take out a dozen spoons on the table; remove 1 if you didn\u2019t sleep well last night, forgot to take your meds or skipped a meal and take away 4 spoons if you\u2019re flaring. Say you only have 7 spoons left, how are you going to use them? Things like going to school\/ work or grocery shopping uses 4 spoons, making a meal uses 3, bathing or styling your hair takes 2 spoons\u2026 How long will it take you to be out of spoons?<\/p>If you\u2019re looking for another way to get the message across, we asked people living with SpA what metaphors they use to describe their symptoms. Feel free to use them for yourself or adapt them to your experience.<\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_image src=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/3-5-1024x1024-1.png\" alt=\"People describing SpA Symptoms\" title_text=\"People describing SpA Symptoms\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p>Create your own!<\/strong><\/h3>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p>We\u2019ve even created a blank one for you to fill out and share on social media! Right Click on the image and select \u201cSave Image As\u201d or click on the below to download and add your own text!<\/p>Blank Image - Download Here<\/a><\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_image src=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/4-1-1024x1024-1.png\" alt=\"Blank Comic\" title_text=\"Blank Comic\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_divider _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_divider][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p>Interested in more resources for Young Adults?\u00a0 Click here<\/a><\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[287,409,198,339,202,196,335],"tags":[210],"class_list":["post-3747","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-jeune-adulte","category-juvenile-fr","category-mode-de-vie-et-bien-etre","category-relations","category-ressources","category-ressources-de-plaidoyage","category-sante-mentale","tag-advocacy-fr"],"_links":{"self":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/3747","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/comments?post=3747"}],"version-history":[{"count":1,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/3747\/revisions"}],"predecessor-version":[{"id":35207,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/3747\/revisions\/35207"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/media\/2504"}],"wp:attachment":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/media?parent=3747"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/categories?post=3747"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/tags?post=3747"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}](\"\/uploads\/2023\/01\/describe-4.png\"){kind=link}
![Blank Image - Download Here<\/a><\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_image src=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/4-1-1024x1024-1.png\" alt=\"Blank Comic\" title_text=\"Blank Comic\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_divider _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"][\/et_pb_divider][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p>Interested in more resources for Young Adults?\u00a0 Click here<\/a><\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[287,409,198,339,202,196,335],"tags":[210],"class_list":["post-3747","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-jeune-adulte","category-juvenile-fr","category-mode-de-vie-et-bien-etre","category-relations","category-ressources","category-ressources-de-plaidoyage","category-sante-mentale","tag-advocacy-fr"],"_links":{"self":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/3747","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/comments?post=3747"}],"version-history":[{"count":1,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/3747\/revisions"}],"predecessor-version":[{"id":35207,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/3747\/revisions\/35207"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/media\/2504"}],"wp:attachment":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/media?parent=3747"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/categories?post=3747"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/tags?post=3747"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}](\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/08\/4-1-1024x1024-1.png\"){kind=link}