{"id":29338,"date":"2024-04-25T13:10:41","date_gmt":"2024-04-25T18:10:41","guid":{"rendered":"https:\/\/sparthritis.ca\/?p=29338"},"modified":"2025-04-23T14:22:05","modified_gmt":"2025-04-23T19:22:05","slug":"lets-get-loud-for-as","status":"publish","type":"post","link":"https:\/\/sparthritis.ca\/fr\/lets-get-loud-for-as\/","title":{"rendered":"Let&rsquo;s Get Loud for AS : Le parcours inspirant de Michael Santillo"},"content":{"rendered":"<div class=\"et_d4_element et_pb_section et_pb_section_0  et_pb_css_mix_blend_mode et_section_regular et_block_section\" >\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_d4_element et_pb_row et_pb_row_0  et_pb_css_mix_blend_mode et_block_row\">\n\t\t\t\t<div class=\"et_d4_element et_pb_column_4_4 et_pb_column et_pb_column_0  et_pb_css_mix_blend_mode et-last-child et_block_column\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_module et_d4_element et_pb_text et_pb_text_0  et_pb_text_align_left et_pb_bg_layout_light\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_text_inner\"><span style=\"font-weight: 400;\">Le parcours de Michael Santillo apr\u00e8s le diagnostic de spondylarthrite ankylosante (AxSpA\/AS) n'illustre pas seulement les d\u00e9fis auxquels sont confront\u00e9s des millions de personnes dans le monde, mais aussi le pouvoir de la communaut\u00e9 et de la d\u00e9termination face \u00e0 l'adversit\u00e9. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Sachant que le manque de sensibilisation du public et des professionnels de la sant\u00e9 a un co\u00fbt \u00e9lev\u00e9, et au lieu de laisser le diagnostic le d\u00e9finir, Michael a choisi de transformer son exp\u00e9rience en une opportunit\u00e9 de plaidoyer et de soutien. Avec une d\u00e9termination in\u00e9branlable, il a entrepris de sensibiliser le public \u00e0 la SA, d'informer les autres sur cette maladie et d'apporter un soutien \u00e0 ceux qui sont confront\u00e9s \u00e0 des d\u00e9fis similaires.<\/span><\/div>\n\t\t\t<\/div><div class=\"et_pb_module et_d4_element et_pb_code et_pb_code_0\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_code_inner\"><script type=\"module\" crossorigin src=\"https:\/\/sparthrite.crowdchange.ca\/js\/53608\/embed.js?lang=fr\"><\/script><\/div>\n\t\t\t<\/div><div class=\"et_pb_module et_d4_element et_pb_image et_pb_image_0\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<span class=\"et_pb_image_wrap \"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"1199\" src=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2024\/04\/WASD_MichaelS.jpg\" alt=\"\" title=\"WASD_MichaelS\" srcset=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2024\/04\/WASD_MichaelS.jpg 1200w, https:\/\/sparthritis.ca\/wp-content\/uploads\/2024\/04\/WASD_MichaelS-980x979.jpg 980w, https:\/\/sparthritis.ca\/wp-content\/uploads\/2024\/04\/WASD_MichaelS-480x480.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1200px, 100vw\" class=\"wp-image-29242\" \/><\/span>\n\t\t\t<\/div><div class=\"et_pb_module et_d4_element et_pb_text et_pb_text_1  et_pb_text_align_left et_pb_bg_layout_light\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_text_inner\"><span style=\"font-weight: 400;\">La SA, maladie inflammatoire chronique touchant principalement la colonne vert\u00e9brale et les articulations sacro-iliaques, peut provoquer des douleurs et des raideurs d\u00e9bilitantes, affectant consid\u00e9rablement la qualit\u00e9 de vie. Dans sa forme la plus grave, elle peut fusionner les vert\u00e8bres et avoir des r\u00e9percussions sur d'autres articulations, ce qui nuit gravement \u00e0 la mobilit\u00e9. Michael ne conna\u00eet que trop bien cette r\u00e9alit\u00e9. Diagnostiqu\u00e9 jeune avec l'AxSpA, il s'est embarqu\u00e9 dans un voyage qui allait mettre \u00e0 l'\u00e9preuve sa force et sa r\u00e9silience d'une mani\u00e8re qu'il n'aurait jamais imagin\u00e9e.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">L'une des \u00e9tapes les plus importantes du parcours de Michael est le gala de collecte de fonds \u00ab Let's Get Loud for AS \u00bb. Chaque ann\u00e9e, Michael et son \u00e9quipe travaillent avec passion \u00e0 organiser une soir\u00e9e inoubliable qui sert de plateforme pour collecter des fonds pour la recherche, les programmes de soutien, la sensibilisation et les initiatives communautaires. Plus qu'une simple collecte de fonds, le gala est une c\u00e9l\u00e9bration de la r\u00e9silience et de l'espoir.<\/span><\/div>\n\t\t\t<\/div><div class=\"et_pb_module et_d4_element et_pb_text et_pb_text_2  et_pb_text_align_left et_pb_bg_layout_light\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_text_inner\"><blockquote><p><strong>\u00ab Je suis tellement fi\u00e8re et humble d'avoir cr\u00e9\u00e9 ce gala de collecte de fonds \u201cLet's Get Loud for AS\u201d... On m'a diagnostiqu\u00e9 une spondylarthrite ankylosante (SA) depuis 2018, et je suis tr\u00e8s heureuse et fi\u00e8re de dire que les merveilleux traitements et l'assistance du CSA et de mon rhumatologue... m'ont vraiment aid\u00e9e \u00e0 vivre une meilleure vie avec facilit\u00e9. \u00bb<\/strong><\/p><\/blockquote><\/div>\n\t\t\t<\/div><div class=\"et_pb_module et_d4_element et_pb_text et_pb_text_3  et_pb_text_align_left et_pb_bg_layout_light\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_text_inner\"><span style=\"font-weight: 400;\">\u00c0 l'approche de la Journ\u00e9e mondiale de la SA, un \u00e9v\u00e9nement annuel consacr\u00e9 \u00e0 la sensibilisation \u00e0 l'AxSpA et aux maladies apparent\u00e9es, l'histoire de Michael Santillo nous rappelle l'importance de la d\u00e9fense des droits et du soutien de la communaut\u00e9. La Journ\u00e9e mondiale de la SA est un mouvement mondial visant \u00e0 sensibiliser le public, les professionnels de la sant\u00e9 et les d\u00e9cideurs politiques \u00e0 l'impact de l'AxSpA et au besoin urgent d'intensifier la recherche et le soutien.<br \/>\n<\/span><\/div>\n\t\t\t<\/div><div class=\"et_pb_module et_d4_element et_pb_image et_pb_image_1\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<span class=\"et_pb_image_wrap \"><img loading=\"lazy\" decoding=\"async\" width=\"1425\" height=\"630\" src=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2024\/04\/LetsGetLoud_BannerPeople.png\" alt=\"\" title=\"LetsGetLoud_BannerPeople\" srcset=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2024\/04\/LetsGetLoud_BannerPeople.png 1425w, https:\/\/sparthritis.ca\/wp-content\/uploads\/2024\/04\/LetsGetLoud_BannerPeople-1280x566.png 1280w, https:\/\/sparthritis.ca\/wp-content\/uploads\/2024\/04\/LetsGetLoud_BannerPeople-980x433.png 980w, https:\/\/sparthritis.ca\/wp-content\/uploads\/2024\/04\/LetsGetLoud_BannerPeople-480x212.png 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1425px, 100vw\" class=\"wp-image-29335\" \/><\/span>\n\t\t\t<\/div><div class=\"et_pb_module et_d4_element et_pb_text et_pb_text_4  et_pb_text_align_left et_pb_bg_layout_light\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_text_inner\"><p><span style=\"font-weight: 400;\">Alors que nous nous r\u00e9unissons pour c\u00e9l\u00e9brer la Journ\u00e9e mondiale de la SA, soyons forts et continuons \u00e0 plaider en faveur d'un monde o\u00f9 toutes les personnes vivant avec l'AxSpA peuvent s'\u00e9panouir.<\/span><\/p>\n<p>Pour ne rien manquer de Michael, suivez-le :<\/p>\n<p><a href=\"https:\/\/www.instagram.com\/mmichael.ss\/ \">Instagram de Michael<\/a><br \/><a href=\"https:\/\/www.instagram.com\/letsgetloudforas\/\">Instagram de Let's Get Loud for AS<\/a><a href=\"https:\/\/sparthritis.crowdchange.ca\/53608\/donate\"><\/a><\/p><\/div>\n\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div><div class=\"et_d4_element et_pb_row et_pb_row_1  et_pb_css_mix_blend_mode et_block_row\">\n\t\t\t\t<div class=\"et_d4_element et_pb_column_4_4 et_pb_column et_pb_column_1  et_pb_css_mix_blend_mode et-last-child et_block_column\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_button_module_wrapper et_pb_button_0_wrapper  et_pb_module  dbdb-icon-on-right dbdb-icon-on-hover\">\n\t\t\t\t<a class=\"et_pb_button et_d4_element et_pb_button_0 cc-open-donation-form et_pb_bg_layout_light et_block_module\" href=\"#\">Faites un don<\/a>\n\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":6,"featured_media":29430,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[199,202,197],"tags":[],"class_list":["post-29338","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nouvelles","category-ressources","category-vos-histoires"],"_links":{"self":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/29338","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/comments?post=29338"}],"version-history":[{"count":1,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/29338\/revisions"}],"predecessor-version":[{"id":35003,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/29338\/revisions\/35003"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/media\/29430"}],"wp:attachment":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/media?parent=29338"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/categories?post=29338"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/tags?post=29338"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}