﻿{"id":24287,"date":"2023-08-29T13:34:57","date_gmt":"2023-08-29T18:34:57","guid":{"rendered":"https:\/\/sparthritis.ca\/?p=24287"},"modified":"2023-09-20T09:11:32","modified_gmt":"2023-09-20T14:11:32","slug":"mois-de-la-sensibilisation-a-la-douleur-comprendre-limpact-de-la-spondylarthrite","status":"publish","type":"post","link":"https:\/\/sparthritis.ca\/fr\/mois-de-la-sensibilisation-a-la-douleur-comprendre-limpact-de-la-spondylarthrite\/","title":{"rendered":"Mois de sensibilisation \u00e0 l&rsquo;arthrite et \u00e0 la douleur : Comprendre l&rsquo;impact de la spondyloarthrite"},"content":{"rendered":"<p>[et_pb_section fb_built=\u00a0\u00bb1&Prime; _builder_version=\u00a0\u00bb4.21.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.21.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.21.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.21.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;]<\/p>\n<p><span style=\"font-weight: 400;\"><\/span><\/p>\n<p><span style=\"font-weight: 400;\">Le mois de septembre est \u00e0 la fois le mois de la sensibilisation \u00e0 l&rsquo;arthrite et le mois de la sensibilisation \u00e0 la douleur. Une p\u00e9riode opportune d\u2019\u00e9lucider les d\u00e9fis auxquels sont confront\u00e9s des millions de personnes vivant avec des douleurs chroniques.<\/span><\/p>\n<p><span style=\"font-weight: 400;\"><br \/>La spondyloarthrite affecte n\u2019affecte pas seulement le bien-\u00eatre physique, mais nuire \u00e9galement \u00e0 la sant\u00e9 mentale et \u00e9motionnelle. La lutte constante contre la douleur et les limitations qu\u2019elle impose peut entra\u00eener des sentiments de frustration, d\u2019isolement et de fatigue. Cependant, il est crucial de rappeler que ceux qui sont confront\u00e9s \u00e0 cette condition sont des guerriers qui font preuve de r\u00e9silience et de force au quotidien.Le mois de septembre est \u00e0 la fois le mois de la sensibilisation \u00e0 l&rsquo;arthrite et le mois de la sensibilisation \u00e0 la douleur. Une p\u00e9riode opportune d\u2019\u00e9lucider les d\u00e9fis auxquels sont confront\u00e9s des millions de personnes vivant avec des douleurs chroniques.<\/span><\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.21.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb0px|21px||21px|false|false\u00a0\u00bb custom_padding=\u00a0\u00bb0px|19px||19px|false|false\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;]<\/p>\n<p><span lang=\"fr-FR\"><b>Naviguer dans la douleur cach\u00e9e : <\/b><\/span>La SpA n\u2019affecte pas seulement le bien-\u00eatre physique, mais a \u00e9galement des cons\u00e9quences n\u00e9fastes sur la sant\u00e9 mentale et \u00e9motionnelle. La lutte constante contre la douleur et les limitations qu\u2019elle impose peut entra\u00eener des sentiments de frustration, d\u2019isolement et de fatigue. Il est essentiel de se rappeler que les personnes qui vivent avec cette maladie invisible sont des guerriers qui font preuve de r\u00e9silience et de force au quotidien.<\/p>\n<p><span lang=\"fr-FR\">Nous soulignons l\u2019importance de l\u2019empathie et de la validation dans le soutien aux personnes vivant avec la SpA, m\u00eame lorsque leur douleur ne soit pas apparente. L&rsquo;ACS s\u2019efforce de veiller \u00e0 ce que des ressources en mati\u00e8re de gestion de la douleur soient disponibles tant pour les soignants que pour les personnes diagnostiqu\u00e9es. Ces ressources sont <\/span><a href=\"https:\/\/sparthritis.ca\/fr\/category\/ressources\/douleur\/\"><span style=\"color: #1155cc;\"><span lang=\"fr-FR\"><u>accessible ici<\/u><\/span><\/span><\/a><span lang=\"fr-FR\">.<\/span><\/p>\n<p><span lang=\"fr-FR\">Pour en savoir plus sur la gestion de la douleur, <\/span><a href=\"https:\/\/sparthritis.ca\/event\/layered-pain-management-for-chronic-pain\/\"><span style=\"color: #1155cc;\"><span lang=\"fr-FR\"><u>inscrivez-vous \u00e0 notre prochaine webinaire sur la gestion de la douleur avec le Dr. Max Sun.<\/u><\/span><\/span><\/a><\/p>\n<p><strong style=\"font-size: 20px;\">Impact sur la qualit\u00e9 de vie <\/strong><span style=\"font-size: 20px;\">:\u00a0\u00a0<\/span><span lang=\"fr-FR\">L&rsquo;ACS a demand\u00e9 aux patients de SpA partout au Canada de partager leurs exp\u00e9riences sur la fa\u00e7on dont la douleur caus\u00e9e par la SpA affecte leur vie. Plus de 850 personnes se sont exprim\u00e9es. Nous avons compil\u00e9 les r\u00e9ponses dans notre rapport d&rsquo;enqu\u00eate sur la qualit\u00e9 de vie.<\/span><\/p>\n<p><span lang=\"fr-FR\">Ce rapport affirme l\u2019impact significatif qu\u2019a la SpA sur la qualit\u00e9 de vie des patients. Il r\u00e9v\u00e8le \u00e9galement ce dont les patients ont besoin pour mieux vivre. Des \u00e9l\u00e9ments tels qu\u2019une meilleure connaissance et compr\u00e9hension des sympt\u00f4mes, un diagnostic pr\u00e9coce et un acc\u00e8s \u00e0 des options th\u00e9rapeutiques efficaces. Vous pouvez consulter les recommandations en acc\u00e9dant au rapport, <\/span><a href=\"https:\/\/sparthritis.ca\/how-does-spondyloarthritis-pain-affect-your-quality-of-life\/'\"><span style=\"color: #1155cc;\"><span lang=\"fr-FR\"><u>disponible ici. <\/u><\/span><\/span><\/a><\/p>\n<p><a href=\"https:\/\/sparthritis.ca\/fr\/comment-la-douleur-liee-a-la-spondylarthrite-affecte-t-elle-votre-qualite-de-vie\/'\"><span style=\"font-weight: 400;\"><\/span><\/a><\/p>\n<p><span lang=\"fr-FR\"><b>Plaidoyer pour la sensibilisation et le soutien :\u00a0 <\/b><\/span><span style=\"font-size: 20px;\"><span style=\"font-size: 20px;\"><\/span><\/span><span lang=\"fr-FR\">lors de notre r\u00e9cente enqu\u00eate aupr\u00e8s des patients, 80 % d\u2019entre eux ont d\u00e9clar\u00e9 qu&rsquo;ils n&rsquo;avaient jamais entendu parler ou qu&rsquo;ils en avaient entendu parler du terme spondyloarthrite, mais qu&rsquo;ils ne l&rsquo;avaient pas compris jusqu&rsquo;\u00e0 ce qu&rsquo;ils ne soient diagnostiqu\u00e9s. La spondyloarthrite touche plus de personnes que la scl\u00e9rose en plaques et la SLA r\u00e9unies. Pourtant, ces maladies et bien d\u2019autres, m\u00eame rares, sont mieux connues et comprises que la SpA. Des milliers de personnes souffrent de SpA mais ne savent pas qu&rsquo;elles souffrent d&rsquo;une maladie qui, bien que chronique, est traitable, et qu&rsquo;il existe de nombreuses options th\u00e9rapeutiques innovantes et que d&rsquo;autres [options de traitement] se profilent \u00e0 l&rsquo;horizon. En sensibilisant les gens, nous pouvons \u0153uvrer \u00e0 r\u00e9duire les d\u00e9lais de diagnostic, d\u2019\u00e9ducation et \u00e0 am\u00e9liorer l\u2019acc\u00e8s aux options de traitement pour les personnes vivant avec la SpA. Consultez les r\u00e9seaux sociaux de l\u2019ACS et participez \u00e0 nos activit\u00e9s sociales ! Nous vous demandons de partager en utilisant #PainAwarenessMonth et #CSAwareness.<\/span><\/p>\n<p><span lang=\"fr-FR\"><b>Le pouvoir de la communaut\u00e9<\/b><\/span><span class=\"HwtZe\" jsaction=\"mouseup:Sxi9L,BR6jm; mousedown:qjlr0e\" jsname=\"jqKxS\" lang=\"fr\"><span class=\"HwtZe\" jsaction=\"mouseup:Sxi9L,BR6jm; mousedown:qjlr0e\" jsname=\"jqKxS\" lang=\"fr\"><span class=\"HwtZe\" jsaction=\"mouseup:Sxi9L,BR6jm; mousedown:qjlr0e\" jsname=\"jqKxS\" lang=\"fr\"><span jsaction=\"agoMJf:PFBcW;MZfLnc:P7O7bd;nt4Alf:pvnm0e,pfE8Hb,PFBcW;B01qod:dJXsye;H1e5u:iXtTIf;lYIUJf:hij5Wb;bmeZHc:iURhpf;Oxj3Xe:qAKMYb,yaf12d\" jsname=\"txFAF\" class=\"jCAhz ChMk0b\" jscontroller=\"Gn4SMb\"><span class=\"ryNqvb\" jsaction=\"click:E6Tfl,GFf3ac,tMZCfe; contextmenu:Nqw7Te,QP7LD; mouseout:Nqw7Te; mouseover:E6Tfl,c2aHje\" jsname=\"W297wb\">: <\/span><\/span><\/span><\/span><\/span><span lang=\"fr-FR\">Chaque jour, l\u2019ASC reconna\u00eet la force et la r\u00e9silience de la communaut\u00e9 SpA. Les experts conviennent que participer \u00e0 un groupe de soutien peut am\u00e9liorer la vie. Des groupes de soutien en ligne aux rencontres locales, la communaut\u00e9 SpA est une source d&rsquo;encouragement, de validation et d&rsquo;espoir pour ceux qui naviguent dans leur parcours. Souhaitiez-vous entrer en contact avec d\u2019autres personnes ? Rejoignez un groupe de soutien <\/span><a href=\"https:\/\/sparthritis.ca\/fr\/groupe-de-soutien\/\"><span style=\"color: #1155cc;\"><span lang=\"fr-FR\"><u>ici<\/u><\/span><\/span><\/a><span lang=\"fr-FR\">.<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.21.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.21.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.21.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p><span lang=\"fr-FR\">M\u00eame si la SpA est une maladie implacable et invisible, il est essentiel de se rappeler qu\u2019il y a de l\u2019espoir. Gr\u00e2ce \u00e0 une sensibilisation, une validation et une compr\u00e9hension accrues de la SpA, nous pouvons cr\u00e9er un environnement favorable pour les personnes touch\u00e9es par cette maladie. En plaidant pour de meilleures recherches, options de traitement, soutien et accessibilit\u00e9 \u00e0 l\u2019\u00e9ducation, nous pouvons ensemble am\u00e9liorer la qualit\u00e9 de vie des personnes atteintes de spondyloarthrite.<\/span>\u00a0<\/p>\n<div aria-hidden=\"true\" class=\"UdTY9 WdefRb\" data-location=\"2\" jsaction=\"agoMJf:gXkcrf;h5CHLc:RHer4,P6Fjxb;rpiAHc:GitQp,fNH7he\" jscontroller=\"ZbunN\" jsname=\"c3wAjc\"><\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Le mois de septembre est \u00e0 la fois le mois de la sensibilisation \u00e0 l&rsquo;arthrite et le mois de la sensibilisation \u00e0 la douleur. Une p\u00e9riode opportune d\u2019\u00e9lucider les d\u00e9fis [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":24474,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"[et_pb_section fb_built=\"1\" _builder_version=\"4.21.0\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_row _builder_version=\"4.21.0\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.21.0\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.21.0\" _module_preset=\"default\" global_colors_info=\"{}\"]<p><span style=\"font-weight: 400;\">September marks Pain Awareness Month, a time to shed light on the challenges faced by millions of individuals living with chronic pain conditions. Among the lesser-known conditions causing chronic pain is Spondyloarthritis (SpA). In this blog post, we aim to raise awareness about the profound impact of pain on those living with SpA and the importance of understanding and supporting individuals affected by this condition.<\/span><\/p>[\/et_pb_text][et_pb_text _builder_version=\"4.21.0\" _module_preset=\"default\" custom_margin=\"0px|21px||21px|false|false\" custom_padding=\"0px|19px||19px|false|false\" global_colors_info=\"{}\"]<ol>\r\n<ol>\r\n<li style=\"font-weight: 400; padding-top: 25px;\" aria-level=\"1\"><span style=\"font-weight: 400;\"><strong>The Burden of Chronic Pain in Spondyloarthritis:<\/strong> Spondyloarthritis is a group of inflammatory diseases that primarily affect the spine and joints. Chronic pain is a hallmark symptom of SpA, significantly impacting the physical, emotional, and social aspects of those affected. We delve into the different types of pain experienced by SpA patients and the daily challenges they face in managing their symptoms.<br \/><\/span><span style=\"font-weight: 400;\"><br \/>Learn more about spondyloarthritis <\/span><a href=\"https:\/\/sparthritis.ca\/what-is-spondyloarthritis\/#whatisspa\"><span style=\"font-weight: 400;\">here<\/span><span style=\"font-weight: 400;\"><\/span><\/a><\/li>\r\n<li style=\"font-weight: 400; padding-top: 25px;\" aria-level=\"1\"><strong>The Hidden Nature of Spondyloarthritis Pain:<\/strong> One of the complexities of SpA is the often invisible nature of pain. As an \"invisible illness,\" those affected by SpA may encounter disbelief or lack of understanding from others who cannot see their pain. We emphasize the importance of empathy and validation in supporting individuals living with SpA, even when their pain may not be readily apparent.<\/li>\r\n<li style=\"font-weight: 400; padding-top: 25px;\" aria-level=\"1\"><strong style=\"font-size: 20px;\">Impact on Quality of Life<\/strong><span style=\"font-size: 20px;\">: Chronic pain in SpA can significantly reduce an individual's quality of life, affecting their ability to carry out daily activities, work, and engage in social interactions. We share personal stories and experiences to illustrate the far-reaching impact of pain in SpA and highlight the need for comprehensive support system.<br \/><\/span><span style=\"font-weight: 400;\"><br \/><\/span><span style=\"font-weight: 400;\">Learn more on the impact on Quality of Life in our report, <\/span><a href=\"https:\/\/sparthritis.ca\/how-does-spondyloarthritis-pain-affect-your-quality-of-life\/'\"><span style=\"font-weight: 400;\">found here.<\/span><\/a><\/li>\r\n<li style=\"font-weight: 400; padding-top: 25px;\" aria-level=\"1\"><strong style=\"font-size: 20px;\">Strategies for Pain Management:<\/strong><span style=\"font-size: 20px;\"><span style=\"font-size: 20px;\"> Effective pain management is essential for individuals with SpA to enhance their overall well-being and maintain a sense of normalcy. We explore various pain management strategies, including medication, physical therapy, exercise, and complementary therapies, that can help improve daily living for those with SpA.<br \/><\/span><\/span><strong style=\"font-size: 20px;\"><span style=\"font-weight: 400;\"><\/span><\/strong><strong style=\"font-size: 20px;\"><span style=\"font-weight: 400;\"><br \/>To learn more about Pain management,<\/span><a href=\"https:\/\/sparthritis.ca\/event\/layered-pain-management-for-chronic-pain\/\"><span style=\"font-weight: 400;\"> register for our upcoming webinar on Pain Management with Dr. Max Sun.<\/span><\/a><\/strong><\/li>\r\n<li style=\"font-weight: 400; padding-top: 25px;\" aria-level=\"1\"><strong style=\"font-size: 20px;\">Advocating for Pain Awareness and Support:<\/strong><span style=\"font-size: 20px;\"><span style=\"font-size: 20px;\"> As Pain Awareness Month presents an opportunity to amplify our voices, we encourage readers to become advocates for pain awareness and support for people living with Spondyloarthritis.. By raising awareness, we can work towards reducing stigma, promoting research, and improving access to specialized care and resources for those living with SpA.<\/span><\/span><\/li>\r\n<li style=\"font-weight: 400; padding-top: 25px;\" aria-level=\"1\"><span style=\"font-weight: 400;\"><strong>The Power of Community:<\/strong> Lastly, we celebrate the strength and resilience of the SpA community, acknowledging the power of coming together to support one another. From online support groups to local meetups, the SpA community serves as a source of encouragement, validation, and hope for those navigating their pain journey.<\/span><span style=\"font-weight: 400;\"><br \/><\/span><span style=\"font-weight: 400;\"><br \/><\/span><span style=\"font-weight: 400;\">Interested in connecting others who share your pain?\u00a0 Join a support group <\/span><a href=\"https:\/\/sparthritis.ca\/join-a-csa-support-group-today\/\"><span style=\"font-weight: 400;\">here.<\/span><\/a><\/li>\r\n<\/ol>\r\n<\/ol>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\"4.21.0\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.21.0\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.21.0\" _module_preset=\"default\" global_colors_info=\"{}\"]<p><span style=\"font-weight: 400;\"><strong>Conclusion<\/strong>: As we observe Pain Awareness Month, we lift up the voices of people living with Spondyloarthritis and all those affected by chronic pain. Through education, empathy, and advocacy, we can create a more compassionate and understanding society that supports and uplifts those experiencing pain. Together, let's raise our voices, spread awareness, and work towards a future where pain is acknowledged, validated, and addressed with empathy and comprehensive care.<\/span><\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[199,196,365],"tags":[],"class_list":["post-24287","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nouvelles","category-ressources-de-plaidoyage","category-special-advocacy-fr"],"_links":{"self":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/24287","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/comments?post=24287"}],"version-history":[{"count":0,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/posts\/24287\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/media\/24474"}],"wp:attachment":[{"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/media?parent=24287"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/categories?post=24287"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sparthritis.ca\/fr\/wp-json\/wp\/v2\/tags?post=24287"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}