L\u2019Association canadienne de spondylarthrite (ACS) est une association nationale cr\u00e9\u00e9e pour soutenir les personnes atteintes de spondylarthrite (SpA), dont la spondylarthrite ankylosante (SA), l\u2019arthrite psoriasique (AP), l\u2019arthrite li\u00e9e \u00e0 une maladie inflammatoire de l\u2019intestin (arthrite ent\u00e9ropathique), l\u2019arthrite idiopathique juv\u00e9nile et les spondylarthropathies associ\u00e9es.<\/span><\/p>\n

En tant qu\u2019organisation de d\u00e9fense et d\u2019\u00e9ducation dirig\u00e9e par les patients, nous travaillons en partenariat avec les patients, les soignants et la communaut\u00e9 m\u00e9dicale dans son ensemble pour partager avec les autres patients atteints de SpA des informations et des ressources fond\u00e9es sur des donn\u00e9es probantes, pour les soutenir dans leur parcours de sant\u00e9 tout au long de leur vie.<\/span><\/p>\n

En tant que seul organisme sans but lucratif ax\u00e9 uniquement sur la population canadienne vivant avec la spondylarthrite, nous partageons les connaissances et l\u2019exp\u00e9rience de notre leadership et de notre comit\u00e9 m\u00e9dical consultatif pour permettre aux patients de chercher un diagnostic, de prendre des d\u00e9cisions \u00e9clair\u00e9es sur leur traitement et de vivre une vie meilleure.<\/span><\/span><\/p>\n

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L\u2019ACS a \u00e9t\u00e9 fond\u00e9e sous le titre d\u2019Association canadienne de spondylite en 2005 par le Dr Robert\u00a0Inman, un \u00e9minent rhumatologue canadien, qui a vu la n\u00e9cessit\u00e9 pour les patients atteints de SpA d\u2019avoir une voix nationale unifi\u00e9e. En trois ans, avec le soutien d\u2019un groupe de patients et de professionnels de la sant\u00e9, l\u2019ACS a \u00e9t\u00e9 form\u00e9e. Constitu\u00e9e en tant qu\u2019organisme \u00e0 but non lucratif en 2008, l\u2019ACS joue un r\u00f4le essentiel dans la sensibilisation \u00e0 la SpA et aide les patients \u00e0 r\u00e9aliser leur plein potentiel de sant\u00e9.<\/span><\/p>\n

En 2021, l\u2019ACS a obtenu le statut d\u2019organisme de bienfaisance enregistr\u00e9 par l\u2019Agence du revenu du Canada. Avec le statut d\u2019organisme de bienfaisance, l\u2019ACS est en mesure de remettre des re\u00e7us aux fins de l\u2019imp\u00f4t pour les dons de bienfaisance soutenant le travail de l\u2019organisme et de recevoir des subventions de bienfaisance.<\/span><\/p>\n

En 2023, l\u2019Association canadienne de spondylite a chang\u00e9 son nom pour celui d\u2019Association canadienne de spondylarthrite. Ce changement de nom et de concept de l\u2019organisation est le r\u00e9sultat d\u2019une consultation avec les partenaires mondiaux en SpA, le comit\u00e9 m\u00e9dical consultatif de l\u2019ACS<\/a>\u00a0 et les membres de la communaut\u00e9 de patients atteints de SpA, et a \u00e9t\u00e9 fait pour refl\u00e9ter le changement global de terminologie vers l\u2019utilisation de spondylarthrite comme terme g\u00e9n\u00e9ral et de spondylarthrite axiale (axSpA) pour la spondylarthrite ankylosante. Il est \u00e9tabli que la SpA inclut ceux qui vivent avec la axSpA\/SA aussi bien que ceux qui ont d\u2019autres spondylarthropathies outre la axSpA\/SA.<\/span><\/p>\n

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[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ admin_label=\u00a0\u00bbMission and Vision\u00a0\u00bb _builder_version=\u00a0\u00bb4.17.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_image=\u00a0\u00bbhttps:\/\/sparthritis.ca\/wp-content\/uploads\/2022\/11\/bb01.jpg\u00a0\u00bb da_disable_devices=\u00a0\u00bboff|off|off\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb collapsed=\u00a0\u00bbon\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb da_is_popup=\u00a0\u00bboff\u00a0\u00bb da_exit_intent=\u00a0\u00bboff\u00a0\u00bb da_has_close=\u00a0\u00bbon\u00a0\u00bb da_alt_close=\u00a0\u00bboff\u00a0\u00bb da_dark_close=\u00a0\u00bboff\u00a0\u00bb da_not_modal=\u00a0\u00bbon\u00a0\u00bb da_is_singular=\u00a0\u00bboff\u00a0\u00bb da_with_loader=\u00a0\u00bboff\u00a0\u00bb da_has_shadow=\u00a0\u00bbon\u00a0\u00bb][et_pb_row column_structure=\u00a0\u00bb1_2,1_2″ admin_label=\u00a0\u00bbMission and Vision\u00a0\u00bb _builder_version=\u00a0\u00bb4.16″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb collapsed=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2″ _builder_version=\u00a0\u00bb4.16″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text admin_label=\u00a0\u00bbVision\u00a0\u00bb _builder_version=\u00a0\u00bb4.19.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb animation_style=\u00a0\u00bbfade\u00a0\u00bb animation_delay=\u00a0\u00bb300ms\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/google.com\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Vision<\/strong>: Toutes les personnes atteintes de spondylarthrite peuvent r\u00e9aliser leur plein potentiel de sant\u00e9 et vivre une vie meilleure.<\/span><\/h3>\n\u00a0<\/span><\/h3>\n
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Mission<\/strong>: \u00a0\u00catre la voix principale de la communaut\u00e9 de spondylarthrite au Canada, en \u00e9duquant, en soutenant et en plaidant pour les personnes atteintes de spondylarthrite.<\/span><\/span><\/h3>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ admin_label=\u00a0\u00bbWhat we do\u00a0\u00bb _builder_version=\u00a0\u00bb4.16″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb da_disable_devices=\u00a0\u00bboff|off|off\u00a0\u00bb collapsed=\u00a0\u00bbon\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb da_is_popup=\u00a0\u00bboff\u00a0\u00bb da_exit_intent=\u00a0\u00bboff\u00a0\u00bb da_has_close=\u00a0\u00bbon\u00a0\u00bb da_alt_close=\u00a0\u00bboff\u00a0\u00bb da_dark_close=\u00a0\u00bboff\u00a0\u00bb da_not_modal=\u00a0\u00bbon\u00a0\u00bb da_is_singular=\u00a0\u00bboff\u00a0\u00bb da_with_loader=\u00a0\u00bboff\u00a0\u00bb da_has_shadow=\u00a0\u00bbon\u00a0\u00bb][et_pb_row admin_label=\u00a0\u00bbWhat we do\u00a0\u00bb _builder_version=\u00a0\u00bb4.16″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb collapsed=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.16″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.19.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
Ce que nous faisons<\/h2>\n
En collaboration avec les patients, les professionnels de la sant\u00e9 et les aidants, l\u2019ACS est d\u00e9termin\u00e9e \u00e0 aider toutes les personnes touch\u00e9es par la SpA et leurs familles avec ces mesures\u00a0:<\/span><\/p>\n
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Enseigner aux patients atteints de SpA et \u00e0 leurs familles \u00e0 comprendre et \u00e0 g\u00e9rer leurs sympt\u00f4mes afin de r\u00e9duire l\u2019impact de la SpA sur leur vie.<\/span><\/li>\n
Fournir de l\u2019information et des ressources fond\u00e9es sur des donn\u00e9es probantes pour permettre aux patients de prendre des d\u00e9cisions \u00e9clair\u00e9es sur les options de traitement.<\/span><\/li>\n
Fournir de l\u2019\u00e9ducation et des ressources aux professionnels de la sant\u00e9 qui participent au diagnostic et au traitement de la population atteinte de SpA.<\/span>\n
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[\/et_pb_accordion_item][et_pb_accordion_item title=\u00a0\u00bbSensibilisation\u00a0\u00bb _builder_version=\u00a0\u00bb4.19.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb open=\u00a0\u00bboff\u00a0\u00bb]<\/p>\n
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Promouvoir et soutenir la recherche canadienne sur la SpA qui m\u00e8ne \u00e0 une meilleure compr\u00e9hension de la maladie et \u00e0 de nouvelles options innovantes de traitement et de soins. L\u2019ACS a un partenariat de longue date en tant que voix patiente avec le <\/span>Spondyloarthritis Research Consortium of<\/span><\/i> Canada<\/span><\/i> (SPARCC)\u00a0<\/span><\/a><\/li>\n<\/ul>\n
[\/et_pb_accordion_item][et_pb_accordion_item title=\u00a0\u00bbPlaidoyage\u00a0\u00bb _builder_version=\u00a0\u00bb4.19.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb open=\u00a0\u00bboff\u00a0\u00bb]<\/p>\n
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Repr\u00e9senter les patients atteints de SpA sur les sc\u00e8nes nationales et internationales, notamment en plaidant pour un acc\u00e8s \u00e9quitable aux traitements et aux soins pour toute la population canadienne.<\/span><\/li>\n
Favoriser une communaut\u00e9 forte et dynamique o\u00f9 les personnes touch\u00e9es par la SpA peuvent apprendre, partager leurs exp\u00e9riences et se soutenir mutuellement.<\/span><\/li>\n
\u00c9quiper les patients atteints de SpA afin qu\u2019ils plaident pour leurs propres soins de sant\u00e9 optimaux.<\/span><\/li>\n<\/ul>\n
[\/et_pb_accordion_item][et_pb_accordion_item title=\u00a0\u00bbSoutien\u00a0\u00bb _builder_version=\u00a0\u00bb4.19.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb open=\u00a0\u00bboff\u00a0\u00bb]<\/p>\n
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Aider les patients atteints de SpA \u00e0 bien vivre et \u00e0 se sentir vus et entendus en trouvant des solutions enracin\u00e9es dans une compr\u00e9hension commune des exp\u00e9riences v\u00e9cues<\/span><\/li>\n
Guider les patients \u00e0 toutes les \u00e9tapes de leur parcours de traitement, favorisant le diagnostic et le traitement pr\u00e9coces.<\/span><\/li>\n<\/ul>\n
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Notre conseil d’administration<\/span><\/h2>\n
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Notre \u00e9quipe<\/span><\/h2>\n
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Brenda Delodder
Directrice ex\u00e9cutif
<\/span><\/span><\/span><\/span>Ontario<\/p>\n
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Dan Goulet
informatique et support<\/span><\/span><\/span>
Ontario<\/p>\n
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Antoinette Carlucci
<\/span><\/span> <\/span><\/span>Responsable des communications
<\/span><\/span> <\/span><\/span>Qu\u00e9bec<\/span><\/span><\/p>\n
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Michael Santillo
Ambassadeur
de lev\u00e9e de fonds<\/span><\/span><\/span>
Qu\u00e9bec<\/p>\n
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Nos partenaires<\/span><\/h2>\n
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L\u2019Association canadienne de spondylarthrite (ACS) est fi\u00e8re de reconna\u00eetre ses partenaires corporatifs qui jouent un r\u00f4le d\u00e9terminant dans le soutien de l\u2019ACS afin que nous puissions continuer \u00e0 \u00e9duquer et \u00e0 d\u00e9fendre notre communaut\u00e9 de spondylarthrite.<\/span><\/p>\n
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Nos partenaires communautaires<\/span><\/h2>\n
[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.16″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
L’Association canadienne de la spondylarthrite (ACS) est reconnaissante d’\u00eatre un partenaire communautaire avec les organisations suivantes :<\/span><\/p>\n
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Soutenir l’ACS<\/span><\/h2>\n
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Si vous croyez au soutien des patients canadiens atteints de spondylarthrite et de ceux qui s’en occupent, et que vous \u00eates pr\u00eat \u00e0 faire une diff\u00e9rence, vous pouvez vous impliquer en :<\/span><\/h4>\n
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Qui sommes-nous? L\u2019Association canadienne de spondylarthrite (ACS) est une association nationale cr\u00e9\u00e9e pour soutenir les personnes atteintes de spondylarthrite (SpA), dont la spondylarthrite ankylosante (SA), l\u2019arthrite psoriasique (AP), l\u2019arthrite li\u00e9e […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"
[et_pb_section fb_built=\"1\" admin_label=\"Who we are\" _builder_version=\"4.16\" _module_preset=\"default\" collapsed=\"off\" global_colors_info=\"{}\" disabled_on=\"off|off|off\"][et_pb_row admin_label=\"Who we are\" _builder_version=\"4.16\" _module_preset=\"default\" collapsed=\"off\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.16\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.16\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p>
About the Canadian Spondylitis Association<\/span><\/h1>
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Who We Are<\/h2>
The Canadian Spondylitis Association (CSA) is a national association created to support people suffering from Spondyloarthritis (SpA), including ankylosing spondylitis, psoriatic arthritis, and associated spondyloarthritis diseases.<\/span><\/p>
We are a patient-led advocacy and education organization, partnering with patients, caregivers, and the medical community to connect patients with evidence-based information and resources throughout their journey with SpA.\u00a0<\/span><\/p>
As the only not-for-profit organization focused solely on Canadians living with Spondyloarthritis, we share the knowledge and experience of our leadership and medical advisory board to empower patients to seek a diagnosis, make informed decisions about treatment, and live a better life.\u00a0<\/span><\/p>
The CSA was founded in 2005 by Dr. Robert Inman who saw the need for SpA patients to have a unified, national voice. Over three years, with the support of a group of patients and medical professionals, the CSA was formed. Incorporated in 2008, the CSA plays an essential role in raising awareness of SpA and helping patients achieve their full health potential.<\/span>
<\/b><\/p>
[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\"1\" admin_label=\"Mission and Vision\" _builder_version=\"4.17.4\" _module_preset=\"default\" background_image=\"https:\/\/sparthritis.ca\/wp-content\/uploads\/2021\/06\/image-large-banner.jpg\" collapsed=\"off\" global_colors_info=\"{}\"][et_pb_row column_structure=\"3_5,2_5\" admin_label=\"Mission and Vision\" _builder_version=\"4.16\" _module_preset=\"default\" collapsed=\"off\" global_colors_info=\"{}\"][et_pb_column type=\"3_5\" _builder_version=\"4.16\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.17.4\" _module_preset=\"default\" hover_enabled=\"0\" global_colors_info=\"{}\" link_option_url=\"https:\/\/google.com\" sticky_enabled=\"0\"]<\/p>
Vision: All people living with Spondyloarthritis can achieve their full health potential and live a better life.
<\/span><\/h3>
\u00a0<\/p>
Mission: To be the leading voice for the Spondyloarthritis community in Canada, educating, supporting and advocating for people living with Spondyloarthritis.<\/span><\/h3>
\u00a0<\/h3>
\u00a0<\/h3>
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Right Column Text<\/p>
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What We Do<\/h2>
As patients and caregivers, we share your experiences first hand, and are on a mission to help spondylitis patients and their families by:\u00a0<\/span><\/p>
Teaching spondylitis patients and their families to understand and manage their symptoms to reduce the impact of SpA on their lives.\u00a0<\/span><\/li>
Providing evidence-based information and resources to empower patients to make informed decisions about treatment options.<\/span><\/li>
Guide patients on all stages of their treatment journey, promoting early diagnosis and treatment.\u00a0<\/span><\/li>
Fostering a strong and vibrant community where people affected by SpA can learn, share their experiences and support one another.<\/span><\/li><\/ul>
Over the last decade, we have developed credible, valuable, and relevant resources for patients across Canada. We continue to grow our community and raise awareness of SPA with the public and healthcare professionals so that every patient can live life on their terms.<\/span><\/p>
\u00a0<\/p>
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$\"\"$ <\/b><\/p>
Want to Learn More? <\/b>
<\/b>Download<\/a> our 2020-23 Strategic Plan<\/b><\/p>
[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\"1\" admin_label=\"Support\" _builder_version=\"4.16\" _module_preset=\"default\" background_color=\"#eaeaea\" collapsed=\"on\" global_colors_info=\"{}\"][et_pb_row _builder_version=\"4.16\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.16\" _module_preset=\"default\" global_colors_info=\"{}\"][et_pb_text _builder_version=\"4.16\" _module_preset=\"default\" global_colors_info=\"{}\"]<\/p>
Support the CSA<\/h2>
Additional CTA text to come here<\/p>
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Our Board of Directors<\/h2>
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Name Here<\/a>
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Name Here<\/a>
Position
Province<\/p>
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Our Partners<\/h2>
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The Canadian Spondylitis Association (CSA)\u00a0 is proud to recognize our corporate partners who are instrumental in providing support to the CSA in order that we may continue to educate and advocate for our spondyloarthritis community.<\/span><\/p>
\u00a0<\/p>
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Ready to\/Want to\/Join us... CTA content to come...<\/h2>
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